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Reactive arthritis - 2 year wait

2 replies

User543211 · 12/08/2024 10:35

Just looking for advice on behalf of my husband. He suffered food poisoning in 2012 (aged 27) and it triggered reactive arthritis. He was in a wheelchair for months, also had shingles a few months later so obviously some autoimmune issues. He is loads better now but sometimes has flare-ups. Usually he calls the hospital, sees the specialist and gets treatment to calm things down again. Anyway for about 6 months he's been suffering again with joint pain in his ankles this time. He always leaves it a while because sometimes it calms down on its own and he tries to manage it with rest etc. However it's getting worse and so he's called up rheumatology today to find out that the wait for an appointment is 2 years and that he might not even hear anything?! I realise it's not life threatening but he's now struggling to walk (he's otherwise fit and healthy and we have 2 toddlers to chase after).
What can we do? A private consultant is £250 let alone any treatment costs.

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Pleasetakeaseat · 13/08/2024 12:58

You can exercise your legal right to patient choice and switch to a different rheumatology service within the NHS.
I'm about to do it myself as my own rheumatologist is a total grifter who's about as much use as a chocolate teapot

See point 4 "Asking to change healthcare provider if you have to wait longer than the maximum waiting times"
www.gov.uk/government/publications/the-nhs-choice-framework/the-nhs-choice-framework-what-choices-are-available-to-me-in-the-nhs

User543211 · 13/08/2024 22:45

@Pleasetakeaseat that's so helpful, thank you! Hope you get somewhere with yours as well.

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