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Autoimmune disease

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Original poster

How dangerous is it to be an undiagnosed coeliac if you have no symptoms

29 replies

curlyblonde · 07/08/2024 23:13

My DSis has just been diagnosed as a coeliac and has told me that I should see my GP to get a blood test as it can run in families. However, I have absolutely no symptoms and never have (I'm in my 40s) so is it really necessary? If continuing to eat gluten will cause me long term damage I will of course stop but I can't find any information online on whether this would actually be the case.

OP posts:

CormorantStrikesBack · 08/08/2024 05:30

When Dd was diagnose I tested via 23andme to see if I had the gene for coeliac rather than a test to see if I’d got coeliac. I knew if I just had a negative gp test it would still be possible to develop coeliac disease later on. I’m a bit of a worrier so I knew I’d be down the gp at least once a year asking to be retested, any sign of constipation or stomach issues, etc.

so my gene test was negative so I know I can never develop it and also means dh must have the gene. He’s had a coeliac test and that was negative.

Rhaidimiddim · 08/08/2024 09:41

curlyblonde · 08/08/2024 04:20

That's one that I'd already read about the symptoms of coeliac disease, none of which I have. The only thing I can see to be worried about is a slightly increased risk of cancer, which apparently less than they used think.

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The colleague whose wife I mentioned earlier had no symptoms either. She's a nurse, so you'd expect her to spot any.

Her first symptom was the severe anaemia.

MrsPuddle · 08/08/2024 22:55

"Neither does it 'damage organs'. Just get tested to put your mind at ease."

Please google this and you will see that the untreated inflammation CAN damage organs like kidneys and livers etc. This is why coeliacs have an annual blood test to check if these organs are working within the normal range..

Foxymoxy68 · 08/08/2024 23:05

Foxymoxy68 · 08/08/2024 00:04

For MrsPuddle....

I had a very upset stomach on and off for several months and a complete loss of appetite. I thought it was bowel cancer so the coeliac diagnosis came as a bit of a relief! 😳
Looking back, it explained a lot in terms of my bowel habits which were normal for me but not 'normal' if you know what I mean! Before the acute stuff, I would only go to the loo once or twice a week. Since going GF, this is much better.

Oh, and I also had patches of dry itchy skin all over my body. The GP said it was ringworm. It wasn't. Since going GF, it has completely gone.

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