Anyone on azathioprine…

[Purplepeoniesdroppingpetals]

I came off prednisolone earlier this year (high dose) and it kicked my arse in spite of tapering slowly. I’m hopefully coming off az in August after a year on it as my autoimmune disease is behaving and in remission. Just wondered if anyone has any experience of side effects? Also, have you had any lower leg or feet swelling on this steroid? Ta in advance for any info.

No sorry @Purplepeoniesdroppingpetals. How are you doing now?

Bumping for you. I was on AZ about 13/14 years ago as I also struggled to come off Pred, but stopped tolerating it after a couple of months - lots of vomiting.

I then moved on to a low dose of Mercaptopurine, which is like a purer/ metabolised version, and much more expensive. It's a chemotherapy drug. I stayed on that for 3 or 4 years until my consultant realised I'd been on it for too long and took me off. There were no real side effects from coming off.

Luckily, I have mostly stayed in remission (Ulcerative Colitis), and have managed it for almost 10 years just on Salofalk Suppositories. These work so much better for me than oral pills.

I hope you manage to come off the AZ ok.

I've just come off AZ after being on it for seven years (for ulcerative colitis). Was on pred lots of time before that. I tapered off the AZ over six months, coming off it completely at the beginning of April.

Absolutely no side effects, and my UC had so far stayed in remission.

Hope all is going well OP

Hiya thanks for the replies - hoping to start tapering off in August. My skin is fine but I’ve had loads of other health worries. They’ve now tested me for range of cancers (none of those) and had a clear X-ray for heart failure. Dunno what’s going on but I am feeling better

I'm on AZ... the plan is that it's my only crohn's medication within the next 3 weeks, after over a year of infliximab. I've been taking it since June and it wiped me out at first, but things seem to have settled.

On a reduced dose however as my white blood cells had dropped too low and other markers too high. Time will tell when the infliximab stops i guess!