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Autoimmune disease

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Original poster

Any clues on thyroid results please?

32 replies

SendARavenToRiverRun · 21/05/2024 20:39

Ive had blood tests. I've previously had 'borderline' thyroid issues (no records or numbers that I can see or have been told).
My results are back and I have a TSH level of 6 and TSH receptor of 0.3ul.
I've got a few symptoms. Tired, cold ALL the time, thinning hair/eyebrows. Dry skin, brain fog.
When I was borderline before I was just told to watch and wait. Does anyone think I'll be treated this time or left to retest again in a few months?
Many thanks.

OP posts:

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jennylamb1 · 25/05/2024 17:59

SendARavenToRiverRun · 23/05/2024 14:25

So, a quick update. My thyroid was first found to be borderline in 2015. My last bloods showed it was at 5.2 and its gone up to 6 now.
I rang the doctors to chase it up. The receptionist said it was 'stable' and 'borderline' (obviously not knowing I'd seen the results). She said no action would be taken. I asked for a call back. The doctor said the same as the receptionist. He asked for my symptoms. I mentioned my thinning hair/eyebrows but this is impossible as it only happens at levels of TSH 60. Not 6.
They won't and don't treat under levels of 10. He said my antibodies are negative as well. Ao no issues there.
He's asked me to have bloods taken for B12 and Vit D. So I've booked them in. Maybe its all in my mind!
Thanks for all the advice so far.

Having no antibodies means that it's not Hashimito's Disease which is an autoimmune condition in which your immune system is attacking your thyroid.
If you're symptomatic you could query with the doctor and it's good to get tests on other things. Low vitamin D can be linked to thyroid issues.

CrunchyCarrot · 04/06/2024 21:53

Am surprised your TSH receptor (thyrotropin) antibody level was tested as that is usually what's tested as part of establishing an overactive thyroid! You may see it called TRAb on other forums. Yours is in the normal range so nothing to be concerned about. However your TSH is definitely too high and further tests of FT4, FT3 and TPO and TG antibodies would ideally be done.

soupfiend · 04/06/2024 22:00

I thought the NHS didnt test FT3, thats what I learned on the Healthunlocked forum

buffyslayer · 04/06/2024 22:02

soupfiend · 04/06/2024 22:00

I thought the NHS didnt test FT3, thats what I learned on the Healthunlocked forum

They will! These were my bloods from my new GP who got a bit.. carried away
Yes that's two pages

soupfiend · 04/06/2024 22:04

Lucky you, when Ive had a range of tests including thyroid its never included that one and its not standard apparently

I got mine through a private blood test, wasnt even looking for it to be honest but I appear to be subclinical and will need medication

buffyslayer · 04/06/2024 22:06

soupfiend · 04/06/2024 22:04

Lucky you, when Ive had a range of tests including thyroid its never included that one and its not standard apparently

I got mine through a private blood test, wasnt even looking for it to be honest but I appear to be subclinical and will need medication

I changed doctors. My old one was.. shit

New one explained all about how T4, TSH etc interact, what each one means and immediately upped my dose. Old one basically said I was going to be massively overdosed if they upped me from 50mcg with a TSH of 5

CrunchyCarrot · 04/06/2024 22:12

soupfiend · 04/06/2024 22:00

I thought the NHS didnt test FT3, thats what I learned on the Healthunlocked forum

They often don't. If TSH falls within the normal range then neither FT4 nor FT3 are tested. If TSH is under range then both will be tested (to establish hyperthyroidism). Even if a GP requests FT3 to be tested, if TSH or even FT4 fall within the normal range then the lab won't do it!

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