Talk to me about Lupus

[Christmasbird]

I've been told I have the markers for Lupus (diagnosed back in 2012 after several seizures and a long list of other symptoms) but kept cancelling appointments with Rheumatology due to my own stupidity and not realising how serious the condition can be.

Of course I was eventually taken off the list and despite having issues over the years I have been largely symptom free since 2018.

I'm now 43 and symptoms have ramped up again. I'm awaiting appointments but as it's NHS I have been told there is an 18 month waiting list,
I have recently lost control of my 3 outer fingers on my right hand which seems to mimick nerve damage, indicating that Lupus is present in my nervous system.

Does anyone else suffer with Lupus who can talk to me while I'm awaiting more results and further investigation?
I'm going through a period of intense stress both physically and mentally which relates to work. I just seem to be shutting down if that makes sense.

Hey, I have been diagnosed with lupus for 8 years now, Right now I’m trying to find the right meds for me, I cannot begin to tell you the weird side effects these have on me. I’m totally over having strep, dry mouth (never knew it could be that dry) bleeding gums. My main issues are joint pain and the severe fatigue. I am about to go on steroids for a month to help with the many viruses I keep catching to then go back on more meds.

stress physically and mentally can trigger flare ups, have you tried CBT? I know it’s easily said than done but you need to try and save you energy as much as you can. I find reading helps