I’ve had alopecia areata since I was around seven, believed to be triggered by a bereavement. I’m now mid thirties, have never had a spell since where my entire head has been covered in hair but since having my DS four years ago it’s at its worst. I have about 50% of my scalp bald. As anyone with this condition knows it’s horrible, it affects me daily but summer is the worst, because of the placement of my bald patches it’s hard to wear a cap, in winter it’s easier with wooly hats.
I’ve recently read about the new drug accepted by NICE on the NHS. I am so relieved. I know there’s a chance that I won’t be accepted to have it and I’m sure the waiting list for dermatology appointments is really long but I’ve got a doctors appointment and will hopefully get put through for a referral then. I’ve been referred before but the topical treatments didn’t work and I opted out of steroids because I know once you stop the hair falls back out anyway.
I really hope I get it, and I really hope it works but overall I’m just absolutely thrilled that for many people an option is there that wasn’t a year ago. This is a step in the right direction for us all, even if it’s took so long!