Hashimotos/blood test /HELP

[Mummyto2gorggirls]

Good morning everyone in 2022 I had x2 thyroid test done 3 months apart saying I was borderline, I then in 2023 went to see the doctor and I explained how unwell I felt and I do have anxiety and depression disorder so I put it down to that, in august 2023 I had full blood test done and my antibodies and ESR came back abnormal, I went to see a face to face doctor at my surgery as that’s what they ask me to do , I was asked symptoms I’m having and she told me that she needs to send off advise from a endocrinologist I think it’s called, so for months I was left I kept calling to ask if anything has been done, I then was told to start taking levothyroxine 25mg I looked on my nhs notes that the doctor had put Hashimoto's thyroiditis I went again in November to re have just my thyroid checked my TSh was above high but my t4 was still normal range of 11.6
i on Friday went and had my thyroid checked again and this time my TSH in in normal range 2.99 but my t4 even though it’s in normal range has gone down to 11.1,
all I want to know is is it hashimotos also do you ever actually get a diagnosis, I do have a doctors appointment tomorrow as I put in a complaint about how I feel like I been treated but I just don’t even know what questions to ask, any help would really be appreciated
thankyou

My DD has hashimotos.

She was diagnosed by an endocrinologist and has a letter saying that is what she has.

If you have hashimotos you are entitled to free prescriptions as you need to be on levothyroxine for life.

It took about two years for her to stabilise on levothyroxine and the doctor was adjusting her dose of levothyroxine in that time.

She has been left with permanent pain and fatigue (it was about three years until diagnosis).

If you have Hashimotos you should have had a TPO test to test for Thyroid PeriOxidase antibodies, which are antibodies that attack your thyroid.
Is that the antibody test you had?

If you have it, you will need to be on levothyroxine for life with the dose adjusted periodically as the thyroid gets more destroyed, and you get free prescriptions.

There can also be flare ups with it, and then stable periods.

I have sent what my antibodies where in august 2023

Yeah, looks like Hashimotos then!

There are quite a few support groups /websites out there with info on diets - basically eat healthily. Also make sure your ferritin stays at 100 Ng/mL minimum as that helps a lot with energy levels.

Thank you so much 😊 so would you suggest I ask the doctor that tomorrow and should I be being see by a doctor like a endocrinology specialist, sorry for all the Questions xx

By the way, although for a person without Hashimotos they like to see a TSH level of up to around 5 and consider that normal, for Hashimotos it's recommended to keep the TSH in the lower end of the range (ie close to 1) possible. It varies for everyone, but if my TSH was as high as 2.99 I'd still be feeling awful.

www.nice.org.uk/guidance/ng145/chapter/recommendations

I have an underactive thyroid caused by Hashimotos.

Very early on in my diagnosis (- didn’t get diagnosed until my TSH was 25!) I found Thyroid UK’s Health Unlocked forum. It’s an excellent and active message board with contributors that have extensive knowledge. THESE are your experts in thyroid.

Post what you have written on here on their site and you will get a ton of information that will help you. If you also include your blood test results (omit any identifying details) they will really take the time to explain everything to you.

Thank you 🙏

My TSH is 0.59 and Gp said this is normal even though I have opposite problem as op, overactive thyroid symptoms. My t4 11.9 and Gp said all ok? Didn't even ask me what stage of menstrual cycle I was on when I had the tests. Feel awful but cannot get anywhere.

It’s horrible isn’t it honestly it’s only because I put in a complaint to my surgery that I’m even having a face to face appointment tomorrow x

Op I hope you get somewhere, a lot of self advocating needed- good luck x