CIS - multiple sclerosis

[megrob]

has anyone been recently diagnosed with CIS (clinically isolated syndrome) by neurologist. if so what happened next in terms of them keeping an eye on you? what where the next steps/plan?

Hi there, I replied on your other thread. My initial diagnosis was CIS following my brain/spine MRI, I had a follow-up MRI after six months and after that I was diagnosed with MS on the basis of new activity.

Depending on your scan results and your neurologist’s opinion you may be offered follow up MRI or lumbar puncture in a few months, or you may just be advised to wait to see if any new symptoms develop and take things from there if they do.

It’s a long game and a lot to process. Take care.

@Anon992 a massive thank you and appreciation for responding to my threads!

so a 6 month followup after receiving the diagnosis of cis is quite normal?

i just dont know what to think. my leisions on the brain were found by accident and their suspecting MS. ive only ever had one mri so far but they want to do another in 6 months time and im terrified this is due to them suspecting something else maybe... but in your opinion or experience if they find leisions they must do a followup as standard procedure in 6 months to see if things have developed?

I’m no expert, but when I was diagnosed with CIS I was told I’d have a six month follow up to see if there was new activity which would (and in my case did) indicate a diagnosis of MS. So in my experience (of one person!) it seems normal.

If you google the McDonald criteria it will tell you more about how MS is typically diagnosed.

There are also more active support groups/forums on Facebook and on the MS Society website which might give you more responses than this forum.