Possible IBD

[2DD29]

Diagnosed coeliac, been gluten free since June. Started to feel better, however i keep having periods where I have awful cramps and my stomach becomes tender to touch especially on my right,bad diarrhoea and during these time painful red eyes, rapid heart beat and bloating. But without the flareups I have diarrhoea everysingle morning even before having a drink. Everything I eat I end up in pain. Highly doubt its cross contamination I have my own air fryer, butter, toaster etc. Extreme fatigue also. Does this sound like possible IBD? My biopsy this year showed vilious atrophy, crypt hyperplasia, intraepithelial lymphocytosis and increase in chronic inflammatory cells. Before this I had a 2ww because of high blood count in my stool. Would an IBD have been picked up during this?

Also mouth ulcers and constantly low in Iron however despite different types of iron medication they make my stomach 10 times worse

My husband has severe ulcerative colitis and has some of these symptoms although he was going to the toilet up to 15 times a day and losing a lot of blood each time. A colonoscopy determined what it was. Can you push for this?

Ask for a colonoscopy. I doubt they would decline based on your symptoms

I can go to the toilet about that during a bad time, I have a gastro appointment end of this month, first one since my diagnosis so I've been sort of waiting for this as I know a gp cannot do much. I've had both cameras this year upper for coeliac and lower for the blood in stool, I just thought something would have been picked up during one of these and don't want to make a fuss.

@2DD29 have you considered crohns? I have very similar symptoms. Colonoscopy is the way forward (unfortunately)

@stomachameleon I've had a camera both ends 😆 this year, it was the 2ww for a positive FIT test which come back clear, then the upper endoscopy for my coeliac which was positive. I just don't see lots of blood in the toilet when I have diarrhoea which makes me think it isn't, I understand most with chrons have lots and lots of blood? I do have most symptoms other than that, also inflammatory cells but "no granulomas" but I understand not everyone has with chrons x

@2DD29 without being gross... I don't have lots of blood. I have constant diarrhoea (have a bag now) and I can be nil by mouth and still go constantly. It smells rank, is very mucusy and stringy. Have to eat a low residual diet. I can see what I eat. Have issues with metabolism (short bowel) and dumping syndrome (where food goes in and out super fast)
I have ulcers from top to bottom. Eyes affected, skin, pain in joints, severe stomach pain when unwell. Have had 20+ operations.
I think crohns can be hard to diagnose unless it's flared so it can sit undiagnosed.
I hope you Don't mind me posting it's just we share quite a few symptoms!!

@stomachameleon this sounds like me! I know my food moves though my system quick, say I have peppers in my tea around 6pm, they're visible the next morning around 6am. Everytime I eat I have to use the toilet, and it's never that I can wait, it's urgency everytime. I also get mucus which can be a pink colour. But yes that's also my worry by the time you see someone the flare might be not as bad, but it absolutely wipes me out my whole body hurts I can sleep for 13 hours and it's always my eyes they're so inflamed, I went to an optician he said possible mild blepharitis but definitey inflamed.

Perhaps they didn't do a full colonoscopy and only the bottom end?
Probably worth asking about.

There is a section of bowel that can be affected by Crohn's that sometimes isn't reached with the scope from either direction. I can't remember what it's called though!

Thanks for the replies I have read it can be hard to diagnose due to cameras not reaching, fingers crossed they take me seriously at the hospital appointment you read so many stories about being fobbed off 🙈