Anybody had a misdiagnosis of fibromyalgia?

[florenceandthemac]

Currently undergoing tests to 'rule out' psoriatic arthritis, but the rheumatologist said she thinks I have fibromyalgia.
However, I don't have the all over chronic pain that's described as a symptom of fibro, or the exhaustion.

I have joint pain, in multiple joints, not all at the same time. It's mild, but it's there every day in one joint or another. My finger joint pain is pretty much constant now, with stuff fingers.

In addition, I have severe nail psoriasis and dry eye which many people have before a psoriatic arthritis diagnosis.
From feeling my joints, she doesn't think I have any inflammation. So I'm booked in for ultrasounds, X-rays and (another) MRI in the next two weeks.
She did say even if I don't show signs of inflammation now, and therefore no PsA diagnosis, "doesn't mean I won't have PsA in future" because I do have the signs of it as I've mentioned above.
But is that not like saying I might have it now but it's too mild for a diagnosis, so we will call it fibromyalgia?!

Anybody else been in this position?

Fibromyalgia is a symptom, not a diagnosis. All it means is that your muscles hurt.

Although that was my main symptom, I was actually misdiagnosed with CFS. I actually turned out to have secondary hypothyroidism and as soon as I started thyroxine, my pain disappeared.

My friend, who was also misdiagnosed with fibromyalgia, turned out to have a pituitary tumour.

Be careful though. When there's no definitive diagnostic test and an infinite variety of symptoms you need to be careful.

Fibromyalgia is a "catch all" diagnosis; because it's more of a set of symptoms than anything else. It tends to be what you're diagnosed with to validate that you have symptoms and something is wrong, before they actually know what is wrong.

I was diagnosed with it at 19. I'm 32 now and haven't suffered from it for years and years. I was lucky that my doctor saw it for what it was, though; and didn't decide any new symptom I had must be due to that and wasn't worth investigating, which is reported a lot in Fibromyalgia groups.

I have it and my pain is like yours. Ranges from servere to mild but its all in the joints and I am very stiff too. I prefer to think of it as primary pain (which it is). How i see it is that things that others may not feel /, notice are amplified for me. Some of my joints are hypermobile but only mildly yet I seem to feel the pain of someone with more severe hypermobility. I suppose its possible you have something at a sub clinical level but your brain processes the pain as if you have the full blown disease. My advice (from experience) is to try not to fixate on it, try to learn to live with it but do go back if it changes.

You could have both. Once you get one autoimmune condition you start collecting others.

I've had Fibromyalgia for years, I now have Lupus and Sjorens as well.

But fibromyalgia isn't an autoimmune disease is it @Pixiedust1234?

From July 2021.
New research from the Institute of Psychiatry, Psychology & Neuroscience (IoPPN) at King’s College London, in collaboration with the University of Liverpool and the Karolinska Institute, has shown that many of the symptoms in fibromyalgia syndrome (FMS) are caused by antibodies that increase the activity of pain-sensing nerves throughout the body.

The results show that fibromyalgia is a disease of the immune system.
https://www.kcl.ac.uk/news/new-study-shows-fibromyalgia-likely-the-result-of-autoimmune-problems

Interesting, thanks @Pixiedust1234

Thought I would update. I had a psoriatic arthritis diagnosis last week.
Rheumatologist still 'thinks' I have fibromyalgia, but as long as I'm treated for the PsA I'm not going to bother with anything for the fibromyalgia for now