The stress of not knowing

[Limbolanding]

Hi all,

I had an MRI in June after telling my GP about some symptoms I was concerned could be MS (L’Hermittes sign, optic neuritis, numbness, fatigue). My GP phoned last week to ask if I’d had a neurology appointment yet as she was concerned about the scan results as it showed lesions on the spine.

She said she’d try to hurry the appointment along but the waiting lists are months long. She said in her opinion it was all indicative of MS, she was sorry to share bad news etc, but obviously it can’t be confirmed until I see a neurologist.

I think at this stage I’m just accepting it is as it’s easier than the not knowing. Just wondered if anyone else has been in a similar position or has any words of wisdom while I’m in this limbo stage? Thank you!

I’ve only just come across your post, I’m sorry. Not sure if you’ve had any news by now.

I have relapsing remitting MS, diagnosed 15 years ago and probably will be told it’s become secondary progressive before too much longer. I remember the early days of constantly waiting and pushing for MRI results and neurology appointments to be close together so I could understand what was going on.

If you have by now been diagnosed with MS, or are still thinking it could be that, I’d be very happy to message privately if it would help you.

Good luck.