Multiple sclerosis

[mariam12344]

How long did it take for you to receive your MRI results when MS lesions were found?

I had a meeting with my consultant about a month after my second MRI to discuss it. But this was pre-pandemic so no idea of timescales now.

Good luck

I did a research study as a healthy volunteer and mine came up on that. Got a letter from the study organisers about 3 months later telling me to ask my gp for a referral to a neurologist. Saw one who didn't think I had it. But sent me for another scan. And then saw another one and turns out I did have it. But I usually get results in about 2-3 weeks if it's a monitoring scan.

Thank you for your reply! So that means they don't treat MS lesions seen on a scan as urgent

I had my first MRI in the December just of my spine, didn’t get the results until the following March when I was told the MRI showed white matter lesions/demyelination. Had two follow up MRIs in April (brain) and October (brain and spine with contrast) and eventually diagnosed the following December on the basis of progression and active lesions shown by my MRI in October - so over 12 months from initial scan to diagnosis for me. Then 9 months from diagnosis to starting DMT - it’s a long game.

I was diagnosed in 2012 and I had to gave 4 relapses before qualifying for any DMT's. The first one didn't work so had a second, that did. I think they are trying to hit it harder now from the start. Before the damage is done.

Exh had his MRI at 10.00am on Christmas Eve & the consultant rang at 12.00pm to give him the diagnosis & told him to go to our local hospital to pick up a prescription for steroids. We had paid to go private. I had a scan on the NHS for similar symptoms & the consultant rang 2 hours after to tell me in his opinion I didn't have MS.

A first “attack“ or evidence of lesion may not necessarily lead straight to an MS diagnosis. Even though what I regard as my first relapse being one of my worst, I was still only officially diagnosed as having clinically isolated syndrome. My consultant told me it would almost certainly develop into multiple sclerosis, but it took a little while longer for that to happen.