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Original poster

Hypothyroidism- does this ever get better

5 replies

secretmumoffour · 19/04/2023 12:27

I started thyroxine in January following blood test diagnosing sun clinical hypothyroidism. It's been months and three blood tests later at six week intervals and it's still not right. Got a text to say the doctor wanted to see me about my results (guessing it's still low as I still feel rubbish) but they don't have an appointment for two weeks! So I can go to this appointment and get my points across which symptoms are related to the thyroid? So I'm always tired... obviously, but I've got a constant headache, feel really run down, I'm really moody and panicky to the point that I struggle getting out... will this ever get better?

OP posts:
Can2022getanyworse · 19/04/2023 12:48

It can take aaaaages to get the dose right but once you do, brilliant (until menopause and everything else kick in).

Underactive thyroid is a life-long condition. Check you're getting free prescriptions.

Original poster
secretmumoffour · 19/04/2023 12:58

@Can2022getanyworse Thankyou, at least there is light at the end of the tunnel then. It just feels never ending at the min. Doesn't help that I have to under two either as far as tiredness goes 😂

OP posts:
moonlight1705 · 19/04/2023 13:03

The beat thyroid care I got was whe I was pregnant. The consultant whacked my dosage up as I was not responding to small increases. Apparently GPs have to go in small increments and test each time.

Although not many GPs seem to actually understand many things about hypothyroidism. Check out thr British Thryoid Association page for proper details.

www.btf-thyroid.org/

blondieminx · 24/04/2023 20:47

Are you on enough levothyroxine for your current bodyweight?

the BNF is the guide doctors use for prescribing. You should be on 1.6micrograms per kilogram of bodyweight, ideally taken on an empty stomach in the mornings

BNF prescribing info

Levothyroxine sodium | Drugs | BNF content published by NICE

View levothyroxine sodium information, including dose, uses, side-effects, pregnancy, breast feeding, contra-indications, monitoring requirements and important safety information.

https://bnf.nice.org.uk/drugs/levothyroxine-sodium/#indications-and-dose

duende · 29/04/2023 16:01

blondieminx · 24/04/2023 20:47

Are you on enough levothyroxine for your current bodyweight?

the BNF is the guide doctors use for prescribing. You should be on 1.6micrograms per kilogram of bodyweight, ideally taken on an empty stomach in the mornings

BNF prescribing info

That's interesting. I've had hashimoto's for 20 years and have never heard of the levothyroxin dose being weight dependent. Over the years I have gone from 75mg per day to now 137. Only on this dose I feel vaguely OK and my TSH is 2. I weight 64 kg.

When I was pregnant they increased my dose from what it was pre pregnancy, got my TSH to 1 and I felt great.

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