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Confused by thyroid results

28 replies

Thyroidy · 25/03/2023 11:09

I'm hoping someone might be able to help me understand my latest thyroid results. For a bit of context I have a family history of hypothyroidism and a close relative died following an adrenal crisis in their 30s. I'm a parent carer and high stress is a daily norm. I've gained weight but lost some after a lot of extra stress the end of last year. My hair is falling out and I feel crappy but I barely sleep because of my child's care needs and I have to carry them a lot so it's hard to pick out what causes what. I take elvanse daily and folate as this was low but no other medication.

I had a goiter appear a couple of years ago but this was in lockdown so it took a long time to get checked out. My bloods were normal initially and a scan confirmed a thyroid goiter. Next lot of bloods were showing subclinical hypothyroidism and I was referred to endocrinology. Bloods after this were normal again. Then they forgot about me for nearly a year (and tbf I also forgot about them!). Latest bloods which by the time of my appointment were over a month old showed elevated tsh (7.3), elevated t4 (14.7) ,elevated t3 & antibodies (i wasn't told the figures on these) and low folate (despite having supplements for 6 months). Endocrinology only over phone appointments and there's a lot of crackle and interference during their calls. I find it hard to follow and ask questions during this appointments. I don't understand what all of these results mean? How can I be high on everything? I'm being referred for another scan on my neck and some bloods to check my adrenal function. I was told I'd likely be started on levothyroxin. But wouldn't high everything be something else? I can't find anything about high levels of everything. Only things saying test interference. I'm so confused!

OP posts:
CrunchyCarrot · 11/05/2023 06:16

You probably already know but just in case, out of interest, there’s a theory oats can have a similar effect, even when uncontaminated actual gluten.

Yes it's the protein in them, avenin, which is similar to wheat's proteins. Corn can also cause problems for a similar reason. At the moment I am trying to figure out whether corn affects me, I had thought not. I was trying gluten free corn flakes with oat milk and got a reaction but possibly it's the oat milk that is causing issues rather than the corn! I hate food intolerances!

Thyroidy · 11/05/2023 16:17

CrunchyCarrot · 11/05/2023 06:16

You probably already know but just in case, out of interest, there’s a theory oats can have a similar effect, even when uncontaminated actual gluten.

Yes it's the protein in them, avenin, which is similar to wheat's proteins. Corn can also cause problems for a similar reason. At the moment I am trying to figure out whether corn affects me, I had thought not. I was trying gluten free corn flakes with oat milk and got a reaction but possibly it's the oat milk that is causing issues rather than the corn! I hate food intolerances!

My son has pea milk as he's dairy and gf. It's surprisingly nice!

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Thyroidy · 11/07/2023 10:42

Hope it's OK to update this thread!

My thyroid results continue to confuse me - latest completely normal apparently! The Registrar wasn't very keen on staying on the phone with me and wanted to discharge me. Told me scan came back that the goitre had but "wasn't sinister". Letter says "Repeat bloods in 6 months and discharge."

Is it likely my body had a bit of a wobble and is now OK? I'm not sure whether to argue they should keep monitoring me with family history and this episode?

Confused by thyroid results
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