Rumertoid Athritis (it's Shit isn't it at times )! 😔🤯😵‍💫😵‍💫

[Goodread1]

I have had Rumertoid Athritis since 2019, and it's been like a roller coaster ride ,of usaul, trying this medication and that,
like trial &error experiment,to see which ones work better,

I tried prednisone, I had bad reaction, I coughed up, blood cough,so had medication to counter act that,
Tried other medications like sulfizine,/methotrexate had rash,/bit of skin pigmentation issue,

I am just desperate really ,as can hardly walk ,and feel like shit really

Have you any Complentary Therapies that have eased the pain for a while how long?

Have you tried any vitamins supplements that work for you in any way?

What NHS 💊 medications have you found beneficial for you?

Has anybody tried steriod 💉 injections or key hole surgery on knee?

It is shit. I’m sorry to hear you are suffering so badly. I have had a lot of steroid injections- they don’t last very long but are miraculous for me for a while.
Like you, I tried prednisolone, sulfasalazine, methotrexate etc and then I was on biologics for a while. I am not on baricitinib which is working really well. These newer drugs seem to be really good with fewer side effects - for me at least. Do you see a rheumatologist regularly? I think you need to be quite open about how much you are struggling.
Good luck!

Acupuncture helped but was short lived. I needed about 2 lots a week and that’s £££.
some people find diet helps - you could try being tested for food inflammation etc

NSAIDs helped me quite a bit until they caused internal bleeding.

now it’s only biologics that help. They’re great. Took a long while to get used to turn, a few months of side effects.

Now the only down sides are getting ill often - but not sure how much that is the drugs and how much just having a young kid who brings home lots of stuff from nursery etc.

Not sure what - turn means in that sentence. Sorry!

oh osteopath helps me. A gentle one

I've had it since 2017, it's crap isn't it. The pain at times is off the charts.

I've got quite a cocktail of drugs:

Hydroxychloroquine (sp?)
Methotrexate injection
Baricitinib
For the pain, codeine and naproxen daily.

I've tried the adalimumab biologic, but it didn't really work. My Rheumatologist isn't convinced the biologic I have now is working as he says I've still got high disease activity 🤷‍♀️

All I know is, some flare ups have ended up with me on morphine (that's fun!! 🤣) and more recently had Tramadol added to my codeine. So I guess he is right saying it's active.

I started having RA symptoms in my early 20s and diagnosed in 2010. I’ve been through sulfasalazine, methotrexate (neither worked well enough), tried a biologic that I reacted badly to, now been on Adalimumab for nearly 10 years and it seems to be working still. I’ve had a few steroid injections and not noticed any difference. Hope you find something that helps you, keep telling your rheumatology team how bad you’re feeling. I find the specialist nurses to be the most helpful and sympathetic.

I find the specialist nurses to be the most helpful and sympathetic.

Oh, completely agree, mine is brilliant and always makes time to fully explain things.

It was suggested to me to cut out nightshades and do some reading about gluten and RA. Dr didn’t say go gluten free but do the reading. I have read a bit here and there but not cut it out.

mine is mild thankfully or managed well. I have very weak hands and arms now though which is annoying. Also sick of all the appts. On hydroxyc so eye monitoring etc need to happen.

Hi everyone
I am really Sorry to hear ,that you are experincing the same struggles with ill health of Rumertoid Athritis too.

I am glad to hear that you have thankfully ,discovered something that has helped to make life that much or somewhat better than previously,

@Tattyoldted
I was lucky to have good health, up until 46 yrs age,
I think I toke my good health for granted,i didn't realise how lucky I really was,

Sorry to hear you have been having to deal with this at such young age,as in 20s yr age, that must have seemed like bit of a nightmare,
@Farmhouse1234

It's horrible when a medication 💊 you try, you end up reacting unexpectedly in a bad way as that,

@HerRoyalNotness

Thank you for advice of cutting out night shades kinds of food like tomatoes 🍅 ect too,
A retired nurse told me same thing,and another psychologist nurse too,
I do find that certain foods , or how much I have them,create havoc trigger reaction with my system,that's wild,
So I definitely worth doing food intolerance chart too.

I am intrigued to hear Accuptunture and Osteopath can have beneficial affect too

Thank you so much for your advice...

Here's hoping for even better health for this 🥳new year 🙏 🤒☺️
X

Sorry you’re having such a hard time @Goodread1. Have you tried any biologics yet (or discussed with your rheumatologist)? I have a psoriatic arthritis (so not quite the same to RA; but very similar!) and starting adalimumab has made the world of difference - I rarely have any joint pain now, which is completely different to before. There are quite a range of biologics available now, so there are various options if the first doesn’t work for you.

Dr Chatterjee's podcast this week was about cold water treatment and pain. Don't know if it would help but thought I'd pass it on.

I have psoriatic arthritis and I am really suffering with agonising pain in my shoulder at the moment