@Bonheurdupasse & @Anlou19
Hello, sorry to hear you are in similar situations. I got my diagnosis letter yesterday from the private dermatologist. It was £170 for the appointment and well spent imho. She knew what it was using a handheld scope thingy to check my scalp. It’s a type of scarring alopecia so once hair is lost, it can never grow back. I’m so glad I went and did this. I’ve never gone private before ever, we have no insurance and money is pretty tight but this has been affecting me emotionally a lot and I only got on the NHS waitlist recently because I’d moved home and had a new GP that agreed to refer me.
I’ll quote you the key paragraph from the private dermatologist so you know my symptoms as well:
”Examination of your scalp showed inflammation, crusts, pus and scaling around the hair follicles affecting the top, back and sides of your scalp. There is a two pound coin size patch of hair loss on the right temporal area. The appearance is suggestive of an inflammation called Folliculitis Decalvans (FD).”
It’s so embarrassing especially trying to explain to a hairdresser that it’s not a catching infection. I wear a head scarf to mask how thin my hair has become.
The dermatologist sent a copy of the letter to my GP and also asked my GP to prescribe some medications in the same letter and I’ve done the request online this morning after calling the surgery to check how to ask for the prescriptions. I have a prepayment certificate so it won’t cost me extra for the treatment. I hope to be able to pick it up on Friday and start by the weekend.
The treatment is to try and stop the inflammation and other ugly skin conditions and by doing that stop further hair loss.
The letter linked to this patient leaflet as well:
www.bad.org.uk/pils/folliculitis-decalvans/
The website has leaflets for all types of alopecia so you could look up whatever you are suspected of having or perhaps by now have been diagnosed with. xx