Scarring alopecia….

[PurpleJam2234]

I’ve searched the whole of Mumsnet and only seen this mentioned once 😔…

I’m in my early 30’s and I’ve just been diagnosed with AGA and LPP (scarring alopecia) along with TE from having my baby 6 months ago. So sadly, I have 3 forms of hair loss all happening at the same time, which makes treatment and progress a bit confusing. Hopefully, the postpartum loss should improve and the treatment I am on will stop the scarring/inflammation and then I’m just left with trying to manage Androgenic Alopecia / Female Pattern Baldness for as long as possible and as well as possible.

I’m trying so hard to be positive, treat the condition and be a good mum BUT I’m terrified, it never crossed my mind to think I’d be facing something like this at my age. I’m not ready to lose my hair and I can’t tell if the internet/support groups just have a negative bias and there is hope for me with the right treatment or if I am doomed to just go slowly bald. I’m not sure I can face it, I’m devastated and scared.

Is there anyone on hear who has the same thing or knows someone with it?! Xx

Just saw this while scrolling. i have frontal fibrosing alopecia (FFA ) its desperado it really is but im upbeat too. im on plaquenil- finasteride - and other immune suppressants and am so happy im under the care of a fab dermatologist in Dublin. google dr christos tziatzios- he is a world leader on scarring alopecia based in London. all i think is theres wigs TG . im 49 have it id say 7 yrs. i miss the old me but im trying to stay strong. sendng you lots of hugs

FFA is a horrible horrible condition for women to have .. I was finally diagnosed in October 2023 having gone to a private dermatologist . it took the NHS 2 yrs to move from referral, to have photographic consultation with suspected FFA to going private; a basal cell carcinoma removal ... private again and a phone call asking why I was not being seen. .. 3 referrals and now a diagnosis. That was blunt . FFA, permanent, scarring, irreversible - boom! I was lucky to get a cancellation to see the NHS Consultant and am now on Minoxidil and Dutasteride - a trial drug.. I don't know what the outcome is going be .. there is some more recession and scarring .. Yes it's another auto-immune condition. I am trying to stay calm, but have a stressful job and well during and post covid were extremely stressful times .. that's when I first noticed something was up. Like you I am trying to be positive .. paint a face on, dress as best as I can, go to a good hairdresser. I will update on my trail drugs .. there is another thread on here .. about FFA ...