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Thyroid? Breathless/ Exhaustion? Help Please.

9 replies

ThisisMax · 20/11/2022 17:18

Hello

I posted in May here :www.mumsnet.com/talk/general_health/4554777-breathless-tired-lack-of-interest-in-life

I apologise in advance for the long thread.

Since then I have continued to feel tired. I have occipital neuralgia which is chronic pain most of the time. I'm getting a Rhizotomy for this in December which hopefully should stop that pain. I have given up Amitripyline since May - I thought it was the cause of my exhaustion and it has helped for sure but still tired.

I re-read the thread above recently as I still have palpitations, breathlessness & tiredness - Cardiac Consultant has done trace, ECG, Bloods, Holter, Stress test - all normal. Last review was in June. He was concerned about blood pressure and has now scheduled 1. A sleep study in Dec to rule out apnea and 2. Respiratory function test to rule out respiratory issues.

I still get breathless, palpitations especially after going for a nap - nearly always after a nap and sometimes after waking. I wake with racing heart.
I'm unmotivated, burnt out, tired, not interested in life. I dont think I'm depressed as mood is OK when I'm not wrecked/ in pain. I'm so tired of coping.

From earlier suggestions: B12 , CO10, Vit D - started all this week.
Asthma is fine, regular, medicated. I bought an asthma peak flow monitor and its fine - no dips.
Blood pressure - outside of surgical settings is within average - did it a few weeks ago a few times at home and was normal.
I did wonder if this was panic/ anxiety - I did thave significant anxiety before but this feels different - like its there without any reason - free floating. Prevous panic would be very distinct. But I am sure the stress of this is not helping.
Breathless comes and goes - not wheezy.
Last bloods were in July - GP said all were OK except cholesterol which I can work on. It was 6. He wants 5 or under.

Right now I'm starting to wonder is this Hyperthyroidism?

Waking tired no matter how much sleep (dont think I have apnea)
Starving all the time - eat dinner - eat again.
Not losing weight though - staying on and getting heavier slowly (Amitripyline added to this I'd say)
Foggy thinking, no real motivation.
Breathless, Palpitations.
Sensation of warmth ( have to sleep naked/ boxers on/ minimal clothes- with window open as I'm so hot even in winter- can be sweating at night)
Oversensitivity to heat - Summer was torture. As soon as autumn comes I prefer it.
Overactivity - big push to do things - then slumps of Tiredness/exhaustion
Mood changes
Anxiety
Racing thoughts
Wanting to be alone/ sleep
Want carbs- sugar all the time

Lots of the symptoms on : thyroiduk.org/if-you-are-undiagnosed/hyperthyroid-signs-symptoms/ I can identify but some in Hypo thyroidism also ?

I see my GP next week so am goig to push for full thyroid panel.

Thank you to anyone who got to the end. I hope to resolve occiptial neuralgia first and then find out what the hell is wrong with the rest of me.

Thoughts welcome.

OP posts:
Onceuponawhileago · 20/11/2022 20:04

Bump

Mumma02 · 20/11/2022 20:26

I have loads of your symptoms and don't know what's wrong with me either. Could yours be linked to perimenopause? I'm 34 and had my hormone level checked so don't think that's the case for me. Have you also had your ferritin level checked?

ThisisMax · 20/11/2022 21:07

Sorry I should have said. Im a guy. I thought I posted that male, 49.

OP posts:
Mumma02 · 20/11/2022 21:18

Sorry, I only read this thread and not your linked. Sounds a lot like autonomic dysfunction. That's the route I've been investigating too.

ThisisMax · 20/11/2022 21:28

Thanks @Mumma02
I think I should have posted in the Autoimmune forum. @MumsnetHQ could you move this for me pls.?

OP posts:
123boom · 20/11/2022 21:30

May be worth adding in calcium check for hyperPARAthyroidism and also coeliac?

ThisisMax · 20/11/2022 21:37

@123boom
Thanks. I will google that.

OP posts:
ThisisMax · 20/11/2022 21:39

@123boom
Im not coeliac. That was checked by gastro guy who looked for Gerd and lacto intolerance.

OP posts:
Lennox2207 · 27/11/2022 18:34

Hi,I'm waiting on my visit. Scheduled for tomorrow. I'm 15 months post c section. I got my checkup after 6 weeks.All was OK
Since last week I became a very tired,extremely tired,sore everywhere. Couldn't sleep even tiredness is so bad .I have feeling of something stuck in my trough. Dis you experience something similar?

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