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Autoimmune disease

Anyone have chrons / ulcerative colitis ??

28 replies

Shauna2866 · 28/08/2022 23:07

Anyone have chrons / ulcerative colitis ??

Just wondering really if anymore suffers with the above ?


Basically this all started after I had my c section in January this year started of with constipation which I no can be normal after have a c section but then it turned it to urgency and diarrhea
with blood and mucus the mucus was like brown sorry TMI 🤦🏻‍♀️

Went to the doctors about it he asked me if I have any family history of IBD and I said no as I don’t know of anyone in family who has it so he said I will send
You for blood tests and a stool tests blood test came back normal except my liver
slightly raised but this has been like this for around 3 years as I have pcos so he said sometimes than can be linked with it but I’m having a scan on my liver to make sure everything is okay

My calprotectin test came back and he said it’s abnormal it should be under 50 and Mine is 157 I have no infections as this was checked too I asked for a Copy of the results and it basically said possible IBD and repeat test again in 2/3 weeks but my symptoms completely disappeared and since last week it’s back but I just don’t have the bloody mucus I’m just having cramps and urgency and then constipation/ lose bowels sometimes I get serve cramps where I’m like I need the toilet now I go and nothing happens every morning I wake up literally after 10 mins of being awake I’m in pain with my stomach until I go toilet and then it will go
also my bum burns so much after to sorry 😑🤦🏻‍♀️ I did get referred to a gastroenterologist they have only just called me Friday after 3 months said I can only have a telephone consultation due to covid

But Ive not long found out I’m pregnant again so now she said she won’t do a colonoscopy as it’s to risky but if I need one she will but she doesn’t like doing them incase I misscarry she has left her number for me to call I have called her back over the weekend and left a message explaining that I’m in pain and my bowels have gone all over the place again!


I have jus done another stool tests last week
to see what my levels are if they have increased or gone down but tbh I don’t think they would of done there’s definitely something going on and I wish they would jus see me and let me know

My back is always hurting me as well not sure if that’s pregnancy related I kno it can be but with all my other symptoms I’m worried and I have also read up that calprotectin can detect cancer and I’m worried sick about that as I have to small children and another baby on the way I lost my mum last April to cancer too so I’m always worrying 😰


Didn’t mention my age I’m 29

Sorry for the long post I’m just worried and I feel like I’m getting no where with anyone hopefully I’ll get a phone call back on Tuesday and my stool test back too


Xx

OP posts:
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Shauna2866 · 04/09/2022 19:31

@Yorkie177 there excuse is it’s to risky I’m 5 month pregnant so I’m sure it would be okay if they would let me have one

OP posts:
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DesperatelySeekingInclusion · 12/09/2022 22:46

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Anxiousmummy1187 · 08/01/2023 08:37

Update? X

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