Microscopic colitis

[Nadal]

Does anyone else have a diagnosis of microscopic colitis?

And has anyone had any luck with remission? I was diagnosed last year after suddenly getting symptoms. On my second prescription of budesonide, nearing the end and I don't have a lot of hope of remission this time.

Anyone success with diet etc? There is so much confusing conflicting information online 🙁

Anyone else? 😮

Yes I have it . No long remissions and diet doesnt seem to make a difference. Have you looked on fb groups ,lots of good info there.

@mush7lh I am not a Facebook user so no access unfortunately.

It just seems to be such a haphazard condition to have. No real long term treatment. I know deal with it with omissions of diet. I am trying gluten and lactose free but I know it can take a while to make a difference, if at all.

How long have you been diagnosed and what is your coping strategy?

Thanks

I've been diagnosed for 7 years. Was really bad in the beginning, I was given Budesonide which worked but then the symptoms returned. I dont take it anymore as it is a steroid and I have osteoporosis. I cope using loperamide or staying home and getting on with it. I had to leave my job so mainly I'm at home which makes things easier. It's not good especially if you are young . I'm not.

Could I ask what your symptoms were beyond diarrhoea? I am being investigated at the moment but haven’t had a colonoscopy yet but my doctor mentioned that my symptoms sound more like MC than UC or Crohn’s.

@mush7lh it is hard. I am reluctant to take more budesonide but need to give my kids a summer. I'm 50 so not young but still have others who rely on me.

@Plodosaurus sorry to hear you are experiencing this too. My main symptom was urgent watery diarrhoea, many times a day including overnight. Weight loss, fatigue. No blood though which is often a factor in Chrons and UC.
When is your colonoscopy booked for?

@Plodosaurus My symptoms are watery diarrhoea, sometimes incontinent, bloating, cramps,fatigue dehydration every day. Some days worse than others.

Oh gosh, @Nadal @mush7lh that sounds horrendous. I’m going multiple times a day, and once I get the urge I need to go immediately. It’s not permanent diarrhoea though - more like a few days soft, then a few days diarrhoea. My bloods and sample haven’t shown anything up so it’s a colonoscopy next (in 3 weeks).
It makes life miserable, doesn’t it?!

Its normal for me now.Ive accepted it.
I've forgotten any other way. I think its easier for me as I don't work and don't have anyone dependent on me.

It isn't good no.
I started my symptoms last year and still trying to get my head around it and how it may affect the rest of my life.
I am hoping dietary restrictions help as I see it works for some. A high % of MC sufferers are gluten intolerant. But it takes time to make a difference, if at all.

Good luck with your colonoscopy. Prep is horrible. I opted for sedation and don't remember a thing about the procedure so recommend that. Let us know how you get on.

Just adding to this thread as I have started using Heathers Tummy Fibre (sounds twee I know!!) but it is soluble fibre - acacia senegal. It is definitely improving the diarrhoea, so worth a try if you are experiencing microscopic colitis or any other chronic diarrhoea.