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Multiple Sclerosis sufferer. Not in control of my emotions.

5 replies

AmILaughingOrCrying · 22/05/2022 04:36

I have Multiple Sclerosis. In 2019 I had a really bad relapse that left me in hospital for a week.

Ever since then I've not been in control of my emotional responses to situations. My nurse referred to it as emotional incontinence (helpful!).

I laugh when I don't want to and this often leads to uncontrollable crying.

It's never happened in public before, until tonight. Been out with DH to see a stand up comedian and whilst in the queue to pay for our car parking I was trying to tell him something. It wasn't funny but I got a fit of the giggles. I could sense others in the queue looking at me. I had to try and bite my finger to stop myself but then tears started pouring down my cheeks. I was absolutely mortified, both for me and DH. Like I say it's only ever happened at home before but I was so embarrassed. To not be in control is awful.

Just wondered if anyone has similar experiences and if there are any tips/tricks/techniques for dealing with it.

OP posts:
LunaAndHerMoonDragons · 22/05/2022 04:42

I'd love to know if there is anything that can be done. I sometimes laugh/smile when I'm talking about something that makes me really uncomfortable. I hate it, but I have no answer how to stop.

Asperusual · 23/07/2022 17:05

Very late reply to this so I hope you see it.
What you are describing can be caused if you have a demyelinating (MS) lesion I’m the frontal part of your brain. See the latest MS guidance that NICE has produced- they suggest how this is best managed.
Hope things look up soon.

cheryleett · 12/02/2023 02:56

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Tumbleweeder · 12/02/2023 12:25

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Stop spamming

mygoodies · 20/02/2023 10:58

just seen this op. I have MS and get the same. it's called pseudobulbar effect or something similar.

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