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Autoimmune disease

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I need help. How is best to support my DH who we believe got an IBD?

26 replies

HipsterMum · 22/01/2022 12:00

Hello everyone. I am feeling very low at the moment and struggling to find the right way to support my husband. He's had problems with his digestive system most of his life. They started when he was in his late teens but were quickly dismissed by his GP as just a stage/IBS as a result of stress. They never fully went away and now he is 30 he's been having more frequent periods of flare ups that last weeks. I insisted on him seeing a doctor for a long time now but he always claimed he felt better/what would the do/ I am used to it by now etc. He's never had bleeding or lost weight and so it didn't really affect his life that much, he's got a good job and a family (we got 2 kids together). However lately, it started affecting him more and more. He feels tired all the time and really struggles to pay attention to things. Because of tiredness he started having more frequent mood swings, our intimate life has taken a turn for the worst too. He claims he just feels out of shape and exhausted and just too much is on his mind. It is not a big problem because we find other ways to spend good time together and just watch a movie or cuddle. His symptoms are really bothering him though especially the need to spend a lot of time in the bathroom and mucous discharge that is persistent. Rarely he has episodes of severe cramps in his rectum that usually happen randomly at night time, usually after a stressful time at work. After a lot of reinsurance and support he is finally going to the GP on Tuesday (a lovely lady who I met myself and I am hoping will be supportive and finally push for some proper tests). It is definitely something more serious than IBS because I've seen him struggle with his self esteem as a result of that for some time.

I am struggling to support him because it seems like he is going through a bad flare up at the moment and he is just not himself and whatever I say or do is not really enough. I would honestly appreciate any support in terms of any advice at all on how do we make sure GP doesn't come up with some useless diagnosis like IBS (i have ibs but the symptoms are nothing what he's got)and just dismisses his concerns entirely? What was most helpful to you in your IBD journey?

I love him very much I know it cannot really be cured but I would love him to try at least some medication hoping that it would calm the inflammation down.

Any advice?

OP posts:
Shauna2866 · 31/08/2022 11:26

Hi just wondering weather it was a calprotectin test your husband did ? I’ve just done one about 4 months ago and it was 157 so slightly raised but I’ve been having bloody mucus lose bowels urgency to go constipation going toilet 4/5 times a day this is not like me I normally just go the once every morning I wake up I get Cramps so bad I need to rush to the toilet and after I’ve been the cramps subside I’ve had bloods done Normal
but my stool tests is raised al my symptoms disappeared for 2 months last week I noticed again the bloody mucus having bad cramps urgency ect
so I’ve jus done another stool test to check for inflammation sent it of last Friday but with it being bank holiday suppose take abit longer
I’m just so worried what this can be 😰
i had a phone call from the hospital and they said I can’t have a colonoscopy just yet as I’m pregnant so they will see me after my daughter is born but I can’t wait that long till January the pain is awful so miserable plus I have 2 children as well to care for but when my pain gets really bad literally have no energy

I hope your husband is okay and has got to the bottom of what’s happening with him
xx

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