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Autoimmune disease

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Original poster

Grave's disease

29 replies

deathnotquitewarmedup · 18/12/2021 20:44

I have been referred to an endocrinologist to investigate possible Grave's disease due to high TPO antibodies and persistent subclinical hyperthyroid (TSH undetectable but T3/T4 currently normal) after a bout of suspected post partum thyroiditis. It has come as a bit of a shock as I just assumed it was simply a post partum problem and that issues would resolve after a few months.

I just wondered if anyone had been through similar and has any advice about what might happen next, or can tell me if it's likely to be Grave's disease or could it be Hashimotos even though my TSH is 0?

Thank you!

OP posts:

Delphigirl · 11/01/2022 22:27

I had graces disease after a bout of thyroid it is which caused me to lose a lot of weight and have heart palpitations. I was on carbimazole for a year which sorted out my thyroid levels but caused me to put all the weight I had lost back on plus another stone or more grrr - and have had normal thyroid function since. well, normal thyroid function according to blood tests. I still feel my metabolism is sluggish compared to how it was before but I’ve been perimenopausal and then menopausal since then so maybe it isn’t the thyroid to blame.

Jadeyyy · 29/08/2024 16:26

ACatCalledLola · 03/01/2022 20:39

@deathnotquitewarmedup I’ve just had a look and I have positive TSH receptor antibodies (TRAB) and thyroid peroxidase antibodies (TPO) antibodies and I have Graves so it sounds like you do too. That’s obviously assuming that my diagnosis is correct but since diagnosis I’ve always been overactive with low TSH except for a brief period when I was over medicated.
I know that Graves can appear postpartum and can resolve itself. I think it normally has resolved by a year or 18 months if it’s going to so you may have graves which was triggered by pregnancy. I wouldn’t give up hope of it resolving though as hormones can be crazy for ages, particularly if you’re breastfeeding. I’m assuming my graves resulted from pregnancy as there is no family history which is unusual.
I was diagnosed a couple of years ago and was and still am at times completely overwhelmed, particularly because it was a complete shock. My way of coping is to find out as much as I can about it. From what I understand, most people need treatment for a year to 18 months and then go into remission. This remission can last for life, years or months. In my case it was months but pregnancy complicated it so I have hope that I will go into remission again. At the moment I am on a very low dose of medication. My weight is stable and I don’t have any symptoms so I don’t notice anything other than taking a tablet every day. Of course things can change and I am constantly on the lookout for symptoms but at the moment things are ok.

sorry this is an old thread but how are you doing now?
im 6 months postpartum and suddenly hyperthyroid and waiting to see a specialist, im so confused and worried, can this be a temporary thing or is it normally Graves’ disease? X

ivykaty44 · 14/09/2024 13:12

Jadeyyy

hi, yes it can be a temporary thing and sometimes your body can right itself. Have you been put on any medication whilst waiting to see the endocrinologist?

Original poster

deathnotquitewarmedup · 14/09/2024 16:27

@Jadeyyy hi! Good news from me- it took about 18 months to fully resolve but my thyroid has been back to normal (without medication) for the last couple of years- I had blood tests every 3 months for the first year and a bit and I think now I think I'm supposed to have it checked once a year.

I went very hypothyroid a few months after first going hyper (tsh went from 0 to 50 in about 4 weeks) so got given thyroxine which made me go hyper again quite quickly (in the space of about 6 weeks) so came off that medication completely and tsh stayed at 0 for about 6 months, but my t4 levels were nearly within normal range so they didn't medicate and after that it resolved completely after about 6 months.

They have warned me it could flare up again in the future but for the moment all is well so fingers crossed for you!

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