Sjogren's syndrome lip biopsy

[CityRd]

Blood tests relating to Sjogren's are currently negative however I've still been referred for a lip biopsy next week.
Has anyone experience with this procedure and what is the recovery time. Will I feel well enough for work the next day?

For years I have experienced joint pain with fatigue but this past year my mouth and eyes have been extremely dry. I'm constantly thirsty and food such as toast gets stuck in my throat. With regards to my eyes, drops for lubrication do nothing and my asthma has been continuously out of control too.

Any experiences relating to this condition would be helpful please

Hi,

I had a lip biopsy for sjogrens a while back.
I think most people feel well enough to have a fairly easy work day after the event, but I had appalling toothache along my bottom teeth as soon as the numbing wore off and for the day after.
It was sore after that, but not enough that I was unable to cope.

I can't help with the sjogrens side of things, as my biopsy didn't confirm a diagnosis, although I have many of the symptoms.

I haven't been tested for Sjorgrens, I have Coeliacs, but had to have biopsies from just inside my lip and all so my gum two weeks ago.
I healed surprisingly fast. the dissolvable stitches fell out a few days later, I was in work the next day looking like I had been punched in the mouth masks were handy that day small bruise gone in two days. I'm all healed now and waiting results.

Hi @CityRd , I wondered if you got your diagnosis? I'm 40 and have quite suddenly come down with very dry mouth, eyes, throat and joint pain, as well as gland swelling. I'm awaiting a lip biopsy but my blood tests were negative. Am really hoping I don't have sjrogen's..

I haven’t had the biopsy and my bloods were negative but I was diagnosed with sjorgens based on having lupus and other autoimmune conditions (Addisons etc) and having all the symptoms.

This group may be useful -

www.facebook.com/groups/454589521294750/?ref=share

Thanks BaglesandBrie.

I missed my initial biopsy appointment due to having viral symptoms and it's now been rescheduled for next week. I am however feeling really apprehensive after reading posts on FB from people who have had numb and painful lips months after the biopsy; just can't bear the thought of another ailment being added to my existing portfolio.

Out of curiosity, does anyone know if a diagnosis can be made through a salivary gland ultrasound or any alternative non-invasive procedure other than a lip biopsy?

I had a sialogram today and the radiologist seemed to think that was a useful tool for diagnosing Sjrogen's. Apparently the dye patterns show up in a certain way when the salivary gland is damaged by the disease. My sialogram didn't indicate the presence of this damage but my mouth and eyes are still extremely dry. Awaiting blood test results tomorrow...

You might find this useful (has stuff on diagnosis) www.bssa.uk.net/live/documents/20a.pdf

My optician ran a test using coloured drops and seeing my tears were patchy. I was there as I couldn't wear contact lenses without drying them out in an hour or two and because I have a couple of other autoimmune diseases, she wrote to my rheumatologist with her test results.

When I saw my rheumatologist next, she just put me down as diagnosed with it and didn't see the point in any extra tests. So I think it's more straightforward if you already have autoimmune conditions. Mine flares up in tandem with my arthritis, not as a separate condition.