How long since you stopped eating gluten , three months?
Because once you stop your villi should heal and malabsorption stops being an issue. Though obviously if it’s been a long term chronic thing you may need supplements to recover from the anemia. But symptoms should still be improving not getting worse? And really the stomach pains should have stopped.
I’m just wondering if you’ve got something else going on instead of coeliac or possibly alongside coeliac....IBD/Crohn’s? You really need an endoscopy and possibly a colonoscopy as well.
Previous poster is correct in that you need to still be eating gluten prior to your endoscopy or if coeliac you will get a false negative. Once you have a date you can eat gluten for six weeks beforehand, but this relies on you having six weeks notice of the procedure. The doctor is shit for not explaining this because you’d probably have been better off continuing to eat gluten.....when you reintroduce it to a healed body the symptoms will be worse.
The other possibility is that you think you’ve gone gluten free but actually you’re still consuming it. How strict are you being? Are you thinking about cross contamination, so different toaster, different butter, jam, etc. Different bread knife, wiping down surfaces carefully, different bread board?
Dd had similar symptoms to you and in fact nearly died while waiting for her endoscopy. She kept collapsing and we’d just made the decision to not bother with the endoscopy and proper diagnosis as it was making her so ill. She kept collapsing, vomiting daily. Three days later we couldn’t wake her up properly one morning, she was semi conscious. She was admitted to hospital and they said she was chronically malnourished and days away from death. Funny that I’d rung the GP and the hospital the week before and said I thought she’d be dead before she had the endoscopy and they said I was being dramatic! So yes, it can make you very poorly.