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MS meds - Plegridy/Avonex/Capaxone

4 replies

gailforce1 · 13/03/2021 13:10

If anyone could give me some advice on these MS medications I would be very grateful.
I was diagnosed 10 years ago but not given any medication other than steroids in tablet form (short course).
I lived with symptoms as they were not too bad until a relapse 3 years ago when I had a 3 day course of IV steroids which pretty much returned me to how I was before the relapse.
I had another relapse in March/April 2020 but was offered no help. MRI brain scan revealed no changes. Routine telephone appt with consultant and in November 2020 I had a spine MRI. Finally in February the radiologist contrasted with previous MRI and I have 2 new lesions.
MS nurse has been in touch and asked me to consider the above meds. Does anyone have any experiences or thoughts on the 3options I have been offered? TIA

OP posts:
Stellashere · 14/03/2021 17:41

Hi i don’t have any experience of those meds but if you look on the MS trust, Shift MS or ms society there will be loads of info and I’m sure if you ask on Shift someone will share their experiences of those medications. It’s an odd one with MS you think you will be told the medication and instead we get given the choice! Feels like a big decision doesn’t it.

gailforce1 · 14/03/2021 19:32

Stellashere thank you for your response. It certainly does feel like a big decision and I will look at those sites you suggest. Appt with MS Nurse is on Tuesday so need to be prepared!

OP posts:
Roselilly36 · 14/03/2021 20:03

Ms trust has a good guide to all MS DMD’s. I am surprised that you haven’t been on a DMD already? Was that your choice? I was officially Dx with RRMS in 2014 after my first attack in 2012, I was on Rebif initially, had a few issues, bad reactions in the injection sites, not controlling the disease well enough. I have been on Tecfidera for a few years now, much more convenient tablet twice a day. Good luck with whatever treatment you choose.

Stellashere · 14/03/2021 20:38

Yes @gailforce1 best be prepared as if your MS nurse is like mine she wouldn’t give me an opinion! Just said it’s up to you Hmm I would have thought a specialist nurse would have offered more insight though that may just be my nurse.

How do you feel about starting medication?

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