Psoriasis

[Nowayhozay]

I have had Psoriasis for around 15 years now, as with most sufferers the severity flares from time to time. I have it on both arms, both legs, across my back and a little patch on my tummy.
The physical pain can be bad at times but the mental pain is often worse.
Its horrible having skin that flakes and bleeds, nails that are ridged and can raise of the nail bed.
When you talk to people and you can see their eyes are focused on your patches.
Embarrassing when you leave flakes on a car seat or someones sofa.
The well meaning people who say oh it's the same as eczema or you just need some e45 that will clear it up !
Another summer ahead of covering up to look forward to.
Anyone else suffer ? How do you face the summer, do you just brave it out ?

I have horrific psoriasis, 60% body coverage from plaque/inverse and the rest is guttate. Oh and nail psoriasis so they look hideous. Joys!

I hate it so much, but I’ve had it for so long now I’m kind of used to it I think. I’ve recently started back on Enstilar and that stuff is magical and is really helping. Couple more weeks and I should be clear, anything to stay off methotrexate atm!

Oh and lots of white linen shirts and cropped ankle jeans with sandals when out, so I look summery, but am covered up. I try and get in a bikini in the sun as much as possible when I’m at home though, as the sun does really help.

I suffer!! Hello! Mine is bad, albeit better than last year. I had UV therapy but it came back within a month. My dermatologist said it shouldn't come back that quickly and it should have lasted at least 6 but 🤷‍♀️ Because of my age he won't give me strong drugs (although I think I'd warrant them. The first time he saw me he said I was 'riddled'). I have cream but I barely use it now and to be honest I just 'put up' with it.

I hate getting my legs out and for a long time would wear tights all through summer until one day my partner said it's hot, just please take them off, no one will notice etc. And they didn't..and I think the sun helped. But I don't do this all the time.. probably 1/20 trips in the summer I have no tights on. I just swap to lighter tights.

I HATE people who compare it to eczema! It's not the same. And it causes so many other problems health wise too.

I don't quite know where my post is going just wanted to say you're not alone.

Methotrexate has always scared me, I'm not sure I would be happy using it especially right now. I tend to rely on topicals but it such a bind trying to stay on top of a daily routine. Might just be me but sometimes I just can't be bothered especially when I don't feel there is an improvement.
I look forward to the freedom that winter brings when I can cover up completely. I also wear tights whenever I can, that little bit of confidence can make all the difference, I just try to ignore the collection of flakes when I take them off.
The last few summers I have given up hiding my arms but I still can't go out with bare legs.

I hear you, mine's on my scalp, and used to be pustular.

Then it completely cleared up, and came back along with arthritis.

Mine fets worse in the sun, I can never do things normally.

The best thing I find for arms in the bandages soaked in zinc oxide. Of course then you are wandering round with bandaged arms and people think you must be self harming or have fought off a rabid dog.

I don't have a diagnosis yet, was pushing for a referral pre-lockdown, I have thick, scaly, patches over my scalp and have noticed in warmer weather they are so bloody itchy. Pain over my scalp too, and frequent bleeding. My fingernails are ridged too.

I'm hoping to get some medication to help, I've tried every pharmacy medication for it with nothing alleviating the symptoms. No doubt I'm going to be waiting many months for a referral.

It's so embarrassing having large flakes running through my hair and I've noticed people having a stare. Mortifying.

Folks, try Doo Gro Stimulating Hair Oil, cleared up my scalp and ear psoriasis, I use it once a week, oil my hair for an entire day, shower cap, massage excess into the ears, wash with Dr.Bonner's Castile soap( I prefer the baby mild one) deep condition after. Your head will be clear, itch free and the redness gone. This has also helped my Dad who has psoriasis on his joints and it has done wonders.

My 13 year old gets it in his scalp and currently has it on his arms. Will only use his creams tho if I nag him.