Anyone not feel completely knackered with auto-immune thyroid disease?

[PsuedoSatisfactionBaby]

After successful treatment for Graves some years ago, it has returned. Am back on carbimazole but appears I have been over medicated and recent blood test showed a high TSH tending towards hypo. Awaiting instructions from new endo on next steps but since the recurrence of Graves I have been completely exhausted ALL THE TIME. There must have been a window when My medication was working but I feel cheated as I never realised the benefit of not being completely drained the whole time!
Just looking to see if there is anyone who got the balance of meds right to the extent that their energy levels have not been completely zapped?! Is it possible to have a thyroid disorder under treatment that allows you to return to normal levels of energy?
Please tell me your hopefully positive stories! All I can think about is napping. ALL THE TIME!!

Yes, it is possible! We have lots of autoimmune thyroid disease in our family (both hypo and hyper) and I think all of my thyroid-afflicted relatives have complained of this problem while the disease is not well controlled, but we have all found that it has settled down eventually and we feel healthy again. Did you find it hard to sleep when your Graves disease returned? That "go go go" feeling, combined with poor sleep, can be exhausting. And now that your TSH is high, you are tired for another reason. That is normal too, under these circumstances! But once your medication is at the right dose, you should start to feel better. Try to look after yourself well, with healthy diet, gentle outdoor exercise each day and enough sleep. Sometimes thyroid disease can be associated with nutrional deficiencies, so if you still feel tired once your TSH levels are stable, consider a blood test for iron, vit D, B12.

Oooh that’s good to hear! I guess I just need to be more patient and more diligent at getting my bloods checked frequently. I think perhaps I was lulled into a false sense of security as with my first instance of Graves, it got under control very quickly and I fully recovered within 12 months. I also had all the time in the world...This time around, with two kids in the mix and a full time job I’m struggling with not being able to rest up all the time!

I had Graves and now have Hashis. When not controlled I felt awful (but very different) during both. Once my levels had settled down I felt human (and ten years younger) again. Took a good six to twelve months though each time.

Ah sorry to hear this. My levels are okay but I have antibodies. My endocrinologist and person who did the scan says diet doesn’t make a difference but my doctor said don’t eat gluten. Confused!

I was diagnosed with spondyloarthritis.

And at the same time hashimotos. My levels of thyroid antibodies was really high.

I was advised to rheumatologist to stop gluten, diary, anything from a cow and nightshade vegetables.

I couldn't manage the full autoimmune protocol diet immediately.
So I started with gluten free and nightshade vegetables.

After 2 months my thyroid antibodies were under 10 (had been in the thousands) which is considered normal. And my thyroid function is fine. I had various other things like tummy and digestive issues and rashes which disappeared completely.

Diary free and cow (beef) free made no difference to anything. I tried that during March.

On the vegetables: I've been able to reintroduce peppers. Tomato's are a big no no same for potatoes and artichokes.

I have been tested for ceiliac but the test was negative (prior to giving up gluten). However I read that you can be silent ceiliac and a biopsy would be needed for diagnosis. However I'd now have to gluten myself for that to work.

Try the gluten free it's quite easy to do.

I thought I'd miss lots of things being gluten free. But mostly I don't miss being ill all the time! I don't feel deprived either.

You've nothing to lose by trying it.