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Autoimmune disease

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Original poster

Thyroid TPO over 600

6 replies

42andcounting · 16/12/2019 23:58

I'm hoping someone is still awake who might be able to give me some context on this. After about a year of feeling rubbish and various tests etc, I have just had my thyroid antibody tests back and my TPO is over 600. I gather the normal range is 0.00-9.0, so this seems quite high.

The doctor phoned me today to tell me there was a prescription to be collected for levothyroxine, but no further info, I'm assuming the endocrinology consultant will be in touch fairly soon.

So, how much should I be worried with a level this high? Any advice appreciated, many thanks.

OP posts:

ivykaty44 · 18/12/2019 15:54

Ask the surgery for your TSH results, do you know if your gp has made a referral for you to see an endocrinologist?

Original poster

42andcounting · 19/12/2019 00:24

My TSH has been constant at around 4.35 for the last few tests. When I saw the endocrinology consultant he said that wasn't abnormal enough to explain why I'm feeling the way I do, and referred me to various other specialisations for various tests, which came up with nothing. He then requested the antibody test, which has shown this result. The GP contacted me to tell me I need to start taking the levothyroxine, but I've had no explanation yet of what's actually wrong. I've rung the consultants secretary who said they've only just had the results and he will probably be in contact in due course. I was just really after a bit of context to stop me freaking out meantime

OP posts:

ivykaty44 · 19/12/2019 06:57

Make an appointment with gp and ask for clarification what the situation is and what the intention is to be going forward?

Monkeyhoney76 · 22/12/2019 05:09

Hi TSH of 4.35 feels pretty rank - especially if you're trying to carry on as usual, or it's been like that for ages. My (ex!) GP ignored TSH levels of around same level for 16 months as the old NICE guideline was only treat when over 5. Now it's treat when over 3. I didn't start feeling better until mine was down to 1.5. Private endocrinologist told me TSH needs to be less than 1 to conceive. Was literally on my knees with TSH of 10.8 when a locum first diagnosed the problem.

Monkeyhoney76 · 22/12/2019 05:13

I'd ask for your adrenal function to get checked, too. It can go into overdrive as a result of persistent liw thyroid. Look up symptoms of adrenal fatigue. Hope you're not feeling too down xxx it's not your fault

Monkeyhoney76 · 22/12/2019 05:14

*low

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