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Autoimmune disease
Definitely coeliac disease?
choirmumoftwo · 19/03/2019 22:03
So tTg-IgA is 49 (normal range 0-7) and IgA EMA is strongly positive.
This can't be anything but coeliac can it?
SnowdropsiUnderTrees · 19/03/2019 22:27
It sounds likely although level isn't very high (DS was 6000 with normal range in our area
choirmumoftwo · 19/03/2019 22:41
Yes I've been googling. It's actually my DD 17. So many random symptoms over the years adding up, especially the lack of tooth enamel. I now wonder why her dentist didn't raise the possibility earlier.
MrsNai · 19/03/2019 22:46
What are those results from?
Coeliac UK have an excellent helpline that can aid in deciphering medical results and offer guidance.
Also, if it is Coeliac's Disease they do have a young Coeliac's Disease group.
choirmumoftwo · 19/03/2019 22:54
Hi MrsNai, she went to the GP with various long-standing symptoms. I suspected something autoimmune as I'm a nurse in a related specialty. GP hasn't said much but wants to see her to discuss results.
I've had a look at CoeliacUK site and I'm pretty sure that's what she has. Will see what GP says.
TalbotAMan · 19/03/2019 22:54
Your DD is 'lucky' to be diagnosed at 17. I was diagnosed last year at 60! I have the classic dental symptoms; my enamel is not too bad, but I have translucent and mottled teeth and horizontal ridges, my teeth are prone to breaking, and the hours I have spent in dental chairs and the amount of novocaine that I've been injected with are beyond counting.
To get the dental symptoms, you have to have had active coeliac disease when the adult teeth are forming at the ages of between about 2 and 7.
I don't think dentists are particularly clued up about this. When I was 22 I moved away from home for my first job, and ended up seeing a late 20s dentist who had his surgery decorated with all the certificates for the prizes he had won at dental school -- there were a lot. He did ask me whether I had had a serious childhood illness at a young age, which I denied in ignorance, having checked with my DM in case there was something when I was too young to remember. While it was 40 years ago, and understanding has moved on, even he, though, didn't go so far as to suggest a cause.
After diagnosis, I tried to point out my defects and their cause to my current dentist, whom I would guess is about 30, but he wasn't really taking anything on board.
choirmumoftwo · 19/03/2019 22:59
She doesn't have a diagnosis yet but has so many of the symptoms that it's hard to see what else it could be, especially with the blood results. She's also folate and vitamin D deficient. She needed to have 6 teeth removed due to lack of enamel before braces could be fitted 4 years ago and her wisdom teeth are coming through in the same condition.
BCBG · 25/03/2019 23:21
It will be coeliac disease
The GP will refer her for an endoscopy and she has to keep eating gluten at the equivalent of four slices of bread a day until the appointment. She can give up gluten as soon as the test is done. If she is severely symptomatic or facing exams then they may speed up the appointment. I was diagnosed in January with levels of 79 (as others have said that's not very high) and positive EMA and no gastric symptoms (I thought). Turns out I am calcium and but D deficient, have severe silent reflux and a hiatus hernia 
and have probably had disease for 15 years. Your daughter will feel better soon that's all I can reassure you.
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