My feed
Premium

Please
or
to access all these features

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Autoimmune disease

MS diagnosis seems inevitable

6 replies

AyoadesChinDimple · 08/03/2019 11:41

Ive been in pain daily since November and was off sick for 3 months. Long story short my MRI has shown demyelination and I am now waiting for a lumbar puncture. I have other symptoms and have had for years but never suspected MS.

Can anyone who has MS advise me what treatments you are on and how much this has impacted on your life?

I have two youngish children and am so worried I won't be able to look after them.

OP posts:
AyoadesChinDimple · 09/03/2019 13:51

Anyone?

OP posts:
BCBG · 11/03/2019 23:25

Hi didn't want to leave you unanswered as you must be worrying - just wanted to say that there is another thread in this topic started by a poster called Shinebright09 who has just been diagnosed and there is some helpful info and posters on that thread. Hope it helps a bit x

AyoadesChinDimple · 12/03/2019 06:45

Thank you very much. I'll go and look for that thread x

OP posts:
Fraggle84 · 22/03/2019 17:33

I have ms, been diagnosed for 6 years and have 2 young children

I've been on 2 treatments, tecfidera and tysabri

The tecfidera didn't agree with me, I kept getting awful stomach pains and flushing that made my skin feel like it was sunburnt

Tysabri has been brilliant and really helped stabilise things

I've got benefits in place - pip and blue badge and now drive an adapted notability car

Feel free to pm me if you want to know anything specific

dysongirl · 04/05/2019 01:43

Hi diagonosed since 2003
Put straight onto Rebif 44 injections which worked great for 9years
They wore out of my system so went onto copaxone injections for a couple of year's
But now I take Gilenya tablet which seems to be working as no new activity in my m.r.i.s Smile

Yogagirl123 · 10/05/2019 19:31

My children were young when I had my MS dx confirmed. Try not to worry, you will become an expert at adapting to make life easier for you and your family.

I started on Rebif, injections 3 times a week, unfortunately I had reactions to the injections and it wasn’t controlling the disease well enough, so I switched to Tecfidera, initially I had bad flushing and sickness but after the first few days I was fine,been on it three years now, and according to MRI seems to be effective and two tablets a day much easier than injections.

It’s a worrying time I know. But you can still live a good life with MS.

Please create an account

To comment on this thread you need to create a Mumsnet account.