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Autoimmune disease

Fistula, possible crohns.

3 replies

Youmatter · 13/12/2018 16:31

Hey everyone I hope your day is good wherever you are.

I’ll just start by saying that I avoid drs. I’ll do everything possible to not go. I rarely get sick and really try to keep a somewhat healthy lifestyle. I hate the process I’m currently in because I feel like a bit of a pest when I just want answers. I’m quickly learning that I know my body best and to push when I know something isn’t right.

For the last few months I’ve been having a pretty rubbish time. I developed a perianal abscess that in itself developed a tract or tracts and turned into a fistula. The abscess or fistula never broke the skin.

(Probably weird pointless information but for months I developed lots of spots on my chest that basically went immediately after the op)

At the end of October after weeks of pain and being sent away by doctors with antibiotics, I got pretty sick and needed emergency surgery for the abscess when they discovered the fistula and partially laid it open.

The treatment from staff whilst in the hospital was excellent. Despite long waiting time in a&e as they’re so under pressure. I was constantly reassured and made to feel at ease.

It was when I left the hospital I felt as if I wasn’t given enough information. I really had no idea about all of this. Even after asking questions. They just told me I’d see a consultant in a couple of months. I still have a bit of a lump about an inch away from the op site which makes me believe there’s still a fistula present?

I have been having some tummy trouble, my stools are never ‘firm’ haha sorry for all the gory details. I have pain and noises after eating and quickly need to use the bathroom. I have zero appetite. I’m really hoping it isn’t crohns and it’s just me being stressed and paranoid.

Anyway... I meet my consultant on Christmas Eve to discuss the results of my mri.

I’m just looking some advice on what to expect?

Thanks for reading X

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MollyHuaCha · 13/12/2018 21:05

Sorry you're going through this. Thanks

I would advise you keep a diary of your symptoms between now and seeing your consultant. Include symptoms in all parts of the body even if you think they're not related.

You could make a list of questions to ask.

Hope it goes well and you feel better soon.

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Youmatter · 13/12/2018 21:19

Thanks ❤️

I’m certainly going in there with a lot of questions and not leaving til I get the answers

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BusterGonad · 07/01/2019 02:47

How did your appointment go Op?

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