Please or to access all these features

Autoimmune disease

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Underactive Thyroid post pregnancy

7 replies

Salouu · 24/04/2018 22:24

I’ve recently been diagnosed with an underactive thyroid after going to the drs for what I thought was gallstone pains in my side. Because of high blood pressure and heart rate, they thought I might have an overactive thyroid so sent me for tests, these came back showing underactive and in his words “so low that I should be feeling very very ill” he was so surprised he even repeated the blood test as he didn’t think it was my results. I have a 7 month old baby, lost all my baby weight really quickly and I’m very petite- no weight gain at all.

Anyway, I have since read about people who get an overactive thyroid followed by underactive following having a baby- the dr has no idea what I’m going on about but has agreed in 6 months to stop the tablets to see if it’s gone back to normal. Has anyone had this and found that they have gone back to a normal thyroid level? Also, I’m slowly increasing my tablets and taking 75mg at the moment and the pain in my side has gone, was this possibly from the thyroid issue?

I’m slowly starting to feel normal again, I put my tiredness and foggy brain down to having a baby but these tablets seem to be helping lots!

OP posts:
Salouu · 24/04/2018 22:25

Also I meant to ask- those that continued to have an under active thyroid- did you have any issues TTC going forward?

OP posts:
Muchtoomuchtodo · 24/04/2018 22:29

I was diagnosed with hashimotos when ds2 was 10 months old - also by accident. I was being investigated for a numb patch on my face!

My TSH was 83 and though I wasn't feeling brilliant it wasn't anything specific that I would have seen my GP for (tired but had 2 DC under 3, dry skin, sluggish bowels, aches and pains).

My thyroxine was gradually increased and I now take 150mcg daily. I've not ttc again so can't help with that.

Salouu · 24/04/2018 22:36

He expects that I’ll need to go a go about 150-175mg. I just hope it’s not a life long condition and will go within the year- the dr isn’t hopeful but I’ve read a lot of things that say it can be temporary post pregnancy.

So will you have yours forever? It’s good they found it by accident, like you said you just put down the sluggish feeling to having a baby.

OP posts:
Sophisticatedsarcasm · 24/04/2018 22:48

I have congenital hypothyroidism which means I’ve had it since birth, 30years if dealing with this irritating disease including 2 pregnancy’s where my thyroid levels were more up and down than a yo yo. With my first I was on 150mcg at first then they put me up to 220mcg which I thought was relatively high, when he was born I went back to 150mcg fast forward 5 years for my 2nd I was on 175mcg at the beginning then they put me up to 200mcg which stayed like that till last year when all of a sudden I started feeling shit, they ch3ck3d my blood and said it was 2 high and in a year I’ve been on about 5 different doses, been on 175mcg for 5 months now seem okay. There’s an array of symptoms that come with thyroid issues and hard to distinguish thyroid or other illnesses. Most of them I generally recognise but even after 30 years it’s hard to tell 😩

Muchtoomuchtodo · 25/04/2018 08:20

9 years in now and the dose has been the same for about the last 5 so I think it's here to stay now.
The only problem I have is that the Drs will only prescribe 3 months of medicine at a time so I feel like I' always there picking up and collecting prescriptions. Other than that I guess my aches, pains and tiredness are now the same as any other 42 year old mother of 2 who works!

Ekphrasis · 26/04/2018 15:28

There are different types of thyroid disease; some women get post partum issues that tend to be non autoimmune and this can be characterised by hyper then hypo symptoms, often then settling or going on to remain hypo.

Weight gain with hypothyroidism isn't always a given; I loose weight and was very weak and thin when first diagnosed at 20. When I possibly wasn't on enough thyroxine / had probably missed some doses post partum with my son, again I lost weight.

You can loose muscle mass and weight seems to be dependent on different people's metabolism. I'll gain a little in water retention but over time I start to struggle and either don't loose weight or waste away if I'm not on the correct dose.

You must start to record your blood test results and how much thyroxine you're on as this can be useful if you need to adjust slightly (eg a 25 every other day on top of say 100 or 125.) most people on thyroxine need to be just below 1 or even lower.

Regarding ttc; thyroxine is extremely important for foetal development in the first trimester and tsh must be below 2.5 - though I expect you will need to be less than one to feel well. If you end up on a dose of around 125/150, you're likely to have no functioning thyroid left. So when ttc, you must be aware of your levels before conception and get a blood test between 4-6 weeks (ideally 4/5) and then raise by 25. Bloods should be tested every 4-6 weeks throughout pregnancy and tsh kept below 3.

The above guidelines have been worked out with a gp and endo by the British Thyroid Foundation and should be due to be published soon. If your gp is in any doubt ask them to call either an endo or the obstetricians at the hospital. Annoyingly, you don't see a consultant till 12-14 weeks which is too late and not all gps are up to speed with this. The nice guidelines do actually say to refer to an endocrinologist but in practice that doesn't seem to happen.

I tend to find it's between 10-14 weeks you need the most thyroxine. I briefly went to 200 from 125 pre pregnancy at that point before settling at 175 (I felt like I was on too much after a while)

It's also very important - for everyone- to be getting enough iodine during pregnancy through dairy and white fish but a pregnancy multivitamin with it in is useful. When on thyroxine, iodine isn't as important (it's used by the thyroid to make t4 and t3 along with selenium and iron) but it's still worth making sure you have some from your diet.

When very hypo you can become anaemic or have low iron stores (ferritin) which it's worth checking - 'normal' is over 70 but they tend not to treat. Many feel better if this is over 70 however.

It's also worth keeping on top of vitamin D and B12 (especially post partum and if BF) as both can have similar symptoms to hypothyroidism, which is useful to rule out if you're trying to work out your correct thyroxine dosage.

Apologies that this is a bit of a brain dump, I've been there and got the teeshirt a few times!

Excellent source of info (if you join you get quarterly magazines) and as I say, soon to update the pregnancy and fertility section:

www.btf-thyroid.org

And this book is a really handy resource too:
www.amazon.co.uk/Thyroid-Disorders-Understanding-Family-Doctor/dp/1903474191

mummymi · 26/04/2018 15:48

I had underactive after the birth of my first child I then conceived my second child and it went back to normal. My eldest is now 15 and I haven't had to take it again

New posts on this thread. Refresh page