Possible lupus?

[Alwaysatyke]

Not after advice exactly, more just to see if anyone's been in similar situation:

I've had psoriasis for years, mostly scalp and nails but some on the body too and I'm prone to perioral dermatitis.

About 6 months ago I started getting joint pains which rheum thinks is probably psoriatic arthritis. Had some bad spells but it does ease off too.

At derm appointment last week they spotted dsdna indicators on my last couple of blood tests. Had further bloods taken so they can either get a clearer diagnosis or rule out lupus.

So, am currently waiting on that. Derm was possibly going to put me back on humira (which I've been on before) but wants to wait until results are back as a positive would prob mean a different biologic.

Thing is - alongside this I've had two missed miscarriages in the last five months. I was on the fence about going back on humira (weighing up small but potential risk to baby versus chance that the overactive immune system contributed to mmc).

If it is lupus then that might explain the losses and treatment might help - but equally, if it is then what will my health look like in 5, 10, 20 years? Do I want to bring another baby into that? I was already concerned about my physical state with the psa starting but this has really thrown me.

I'm not into catastrophising and I'm not going to fret too much without any real evidence but I'd love to hear from anyone who's been in a similar situation, or who's happily living with lupus and can help me see a bright side if it does turn out to be that

Lupus can be so difficult to diagnose.
I am in your boat. My ANAs have come back positive, then negative, then positive, then negative. My father suffered from Lupus. Both of my parents have/had autoimmune disorders . I get joint paint, malar rash, headaches/migraines, kidney inflammation, and total brain fog/fatigue. I have this more frequently than I did two years ago.

I am considered as having mild Lupus which my rheumatologist thinks I can keep at bay by reducing stress and just being aware of my body. Knowing that I can check in with him any time if I am feeling that things are getting worse does give me a sense of relief. I am not on any steroids.

It's impossible to envision the future. But I will say that a low stress lifestyle is totally key. I noticed this with my dad. The more stress he was under, the less he was in remission and the more he flared.

I think the best person you can talk to is your rheumatologist. Having Lupus will not stop you from having a family. As I mentioned, both my parents had/have autoimmune disorders (Dad passed away at 77 and he had Lupus. Mum is still going at 82 and has Hashimoto's. She had 3 kids. I too have kids). You can live a long, full, rich life with Lupus, especially if you are under the care of a good rheumatologist and nephrologist (kidneys).

Thanks, that's all really helpful. Having lived with psoriasis for so long I'm pretty well educated about it but basically clueless about lupus. A lot of the symptoms fit but then they fit a lot of other stuff too (hence why I won't jump to conclusions until tests come back). So much has happened in the last year and for the first time I really don't know what treatment I want to pursue or how the baby plans fit into the whole mess.

I am awaiting my results for systemic lupus. I have avoided googling and instead just searched here. Is there any treatment? I don't have any pain, just a butterfly rash and severe sunlight reaction. Also have Hashimotos. Thank you for letting me on this thread, am v anxious. Hope all is well for pps, obviously not in a position to advise x

Ive got this. Had positive then negative ANA's, positive DS anti DNA tests in the past.

I do have diagnosed PsA but my rheumy is still sure there's something else there in the mix. Had my bloods done again on Friday for absolutely everything MCTD connected so we'll see what this lot say.