Transverse Myelitis and MS

[raspberrysuicide]

I had TM in 2010, the lesion was at T4 so I'm paralysed from the chest down.
I have over the last few months developed arm weakness and reduced hand function, my hands have started to curl in and look like clenched fists and I can't open them. I can move my wrists and thumb and bring my hands up to my face. I can eat if someone cuts my food up and then puts a fork into my hand.
I have started another thread about drinking as I can't hold a cup or mug so I drink them through a straw.
I had an MRI which has flagged up another lesion on my spinal cord at C6.
I've read that TM can develop into MS if more lesions develop on your brain and spinal cord. I had the MRI just on my neck and in the future will have to have my brain and the rest of my spinal cord scanned to look for more lesions. If there are more that would be a diagnosis of MS I assume?
Thank you

Quite possibly, raspberry, yes, I'm sorry, but it really is best for you to discuss it fully with your neurologist.

Are you a member of the Transverse Myelitis Society so you can get support from other people going through the same thing? They also offer funding for short courses of neuro physio if you feel you need it.

for you.

Sorry to hear you are unwell Raspberry. Can you see your neurologist again for further opinion/investigation? MS is often difficult to diagnose and many who have had TM do not go on to have MS.

I have also had TM and officially RRMS after a further relapse two years later. However, my neurologist told me he thought I had MS at the same time he confirmed the TM, so hopefully there is some comfort in that for you. I know how worrying the symptoms are, get an appt as soon as you can with your Neurologist.

I hope your health improves very soon.