Chronic illness. Endo + APS aka Hughes syndrome

[Theo0]

Thought I would reach out to see if anybody is juggling two chronic illness and a child and how you are coping?
I had Endometriosis before my first child. After I had him my body went into melt down and they found clots torso down to my legs (lots of them). After over a year of investigation it seems I have a clotting disorder which in turn has caused chronic thrombosis. It has been/ is really difficult. miraculously I have a very happy little boy. I ended up in a&e last week and with further tests it's suspected the endometriosis is back. Im at a loss as it's hard enough with one form of chronic pain. If anyone has any advice regarding managing auto immune, aps, endo, pain management. I would be very grateful.

That sounds hard Theo0. Congratulations with your little boy.

I am fortunate that I just have APS. It is now managed with warfarin having started with self injected heparin while waiting for the warfarin to bring my INR to the correct level.

Main problem with long term warfarin use is that the list of 'donts' seems endless! From what I can tell the ideal warfarin patient is aged 70, does exactly the same thing every day and the only variety is whether they have a custard cream or a bourbon with their small cup of morning coffee!

I am not the ideal warfarin patient!

I have aps, dx after a dvt in 2002. 7 miscarriages, a TIA 2 years ago and cognitive problems (memory loss) Am said to have a 'lupus like syndrome'

Am now on warfarin (self testing is brilliant)
Hydroxychloroquine, and an immunosuppressive (azathioprine) as well propanolol for migraine/aura