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Nuchal Fold Scan 1st mum, very worried by result please help me

46 replies

3frenchhens · 23/12/2009 21:11

I know and appreciate that so many others on this thread I am sure are going through much worse than myself. I am a 1st timer and am so lost. At the hospital they told me nothing other than they had to do bloods to make calculation and than spending alot of time doing the measurement over and over again.

The fold measures 3.3. baby was not being too co-operative. I thought the normal range is 2.5 to 3.5? So I am the high side of normal? My blood results are ready next tues or wed. I am 22.

I am very anxious about this and would really appreciate support. I am a panicker by nature and this is getting to me as we already had a bleed few weeks ago.

Anyone have any advice or support? I am more worried as my dear friend's sister had a terrible late termination due to abnormalities just makes the reality of a very cruel world at times even more obvious.

Please help I am so teary and confused I cant think straight. Just waiting all over xmas when i think i should be happy im still pg after so very long.

I very much appreciate any words of help and ssome tissues

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3frenchhens · 24/12/2009 07:43

thank you so much for your support and kind words. I had a good cry- had to go to work after scan so had no time to think. i will wait for combined result then go from there. I will let you know what happens. Thank you again i would be lost on google if i didnt have your wise words x lets start hoping the postman starts delivering am rather than pm

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Elfytigga · 24/12/2009 08:25

My NF scan was last year - I paid fwiw - the waiting is really hard but I was nearly 40. The scan is only part of it your bloods etc contribute to!

I know it's hard but really try to have a good Xmas and get your results.

I had really good odds and have a healthy baby our measurements were near yours.

PleaseLetMeKnowHowYouGetOnIfYouWantToTiggaxx

Romanarama · 24/12/2009 08:44

I had an amnio with ds3 and had to wait 2 1/2 days for the results, it was so awful, I couldn't do anything - glad it wasn't Christmas. He's fine and I'm much older than you. The chances of a prob at your age are tiny - try to assume your baby's fine unless there's some evidence to the contrary. Good luck with everything xx

(Can you phone to ask about the results - they'll understand that you're worried and it's spoiling your Christmas).

sarah293 · 24/12/2009 08:44

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3frenchhens · 24/12/2009 09:46

thanks everyone as i only had it done yesterday i doubt my results are done yet. I have the screening results number i'll call on monday i'd hope they would be done by then? Do you think they may think i am mad calling today?

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sarah293 · 24/12/2009 10:04

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3frenchhens · 24/12/2009 10:15

i called they arent ready they have to go to portsmouth. Tues afternoon i can call to see if there is any news. midwife has her phone off but doubt she could make me feel any better. i dont think it helps that i know 2 people who are younger than me who have had to make the most awful and heartbreaking decisions, just plays on my mind. My rational mind tells me baby was being awkward lying on the wall and its me so everything has to be a bit more complicated. I just hope i can get into the xmas spirit. Thank you for giving me an outlet x

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GrumpyWhenWoken · 24/12/2009 10:24

I had one of these scans for both of my sons. Second time the result was high - 1 in 100 chance, so I had the CVS test. All was fine.

The thing is the older you are the higher the result as they do a calculation based on your age. Hence the difference in my scans.

Don't panic, have a CVS to put your mind at rest. It's uncomfortable but you can have this done at 12 weeks and it tests for some other abnomalities too. They can tell you the sex of the baby too if you want.

The won't think you're mad, they do understand.

Cantdothisagain · 24/12/2009 11:03

Hi 3FrenchHens

I write as someone who has had the nuchal scan nightmare scenario - initially 8.8mm nuchal fold, going up to over 10 the following day. I could TELL when the sonographer spoke that there was a terrible problem - no need to wait for bloods. As I understand it, 3.2 is in the normal range. If there was something horribly wrong, as there was with me (fatal condition) it would probably have not been in the normal range.

I dont know, but I do know what the stress feels like, and I just want to send you a hug and say 3.2 sounds okay to me. Try to enjoy Christmas. And take care of yourself.

3frenchhens · 24/12/2009 12:16

cantdothisagain- i am so so sorry to hear of your situation, hug. Thank you for your very kind message i am touched and teary. I hope you can have a lovely christmas x

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mowmi · 24/12/2009 14:15

Hello, I hope you get your bloods back soon...the waiting is awful - I ended up paying for a private scan and bloods because like you I was near to a bank holiday and couldn't stand the extra days wait.
I had a similar NF result to yours 3.4 + my bloods weren't great + I'm older (36) all this made my risk 1in2 for DS.
I couldn't believe it - I was beside myself and we opted for CVS (wasn't pleasant but glad we did it) the result came back clear!!
We had extra scans to check heart and I'm sat here with what appears to be a healthy baby wriggling inside my tummy - he's due in 4 weeks.
I wish you strength for your awful wait - even when the odds look awful it can turn out fine. Lots of people told me 3.4 really wasn't so bad so try to hold on to that for now.

Take care x

3frenchhens · 24/12/2009 14:45

Hi mowmi the wait is just terrible. I dont know why I thought I could stand this waiting- not my greatest plan. I am so wishing I had the private scan done now but xmas eve... may have left it too late tbh.
I am so sorry to hear what you have had to go through. I hope your wriggling bubba arrives safely into the world.
Have a peaceful xmas.

x

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Cantdothisagain · 24/12/2009 14:49

Hi 3 FrenchHens (good name)

Hope the wait isnt driving you too mad. I never flippantly say things will be okay as I have twice been pregnant with babies with conditions incompatible with life... but I do think 3.2 is in the normal range; you are young; please do try not to panic yourself into a state over the weekend.

If you do though, come post here and we will hold your hand.

3frenchhens · 24/12/2009 14:59

Hey Cantdothisagain,I am so sorry for your losses, I cant even begin to understand or imagine.
The wait is starting to drive me a little mad and i am very impatient at the best of times. The combination of the thought of the results and the annoyance of just waiting do not hold well.
Dp has gone out for a few hours and he is struggling himself. Selfish, i know for me to want him to be strong and positive because I need him, when this boat is made for both of us. Its just hard since we struggled so hard to achieve this bub. I am desperately hanging on to the positives.
x

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chocolaterabbit · 24/12/2009 15:16

DD's nuchal fold measurement was 3.2mm at the fetal medicine centre (12.5 weeks) she is now a completely healthy and active 2.5 year old. It is very unlikely that your baby will have any problems.

FWIW, the consultant when I was pg with DD said that the fold measurements went up to 8mm + in some cases. A normal measurement (i.e. under 3mm) has about a 2% chance of a chromosomal abnormality) 3-4mm it increases to about 2.5-3% chance. The figs are on the fetal medicine centre research reports.

3frenchhens · 24/12/2009 15:19

Thank you can i read these reports online? Its nice to hear a happy ending from someone who had the same result as me. Google is the work of something evil for me at the moment

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Cantdothisagain · 24/12/2009 16:45

3frenchhens - I hated waiting too. It's so hard, not knowing, and needing to know.

Glad someone has come along with a happy outcome for you.

chocolaterabbit · 25/12/2009 08:16

I think the reports are on pubmed now rather than pdf on the fetal medicine centre website so don't know if you can access.

I think the main thing though is that by far the most likely outcome is that everything is fine and the 20 week scan can really show a lot more detail and if there are any markers from that which look worrying, you could have an amnio or something then which is very low risk by that stage.

The only other thing I would add, is that I got quite wound up about it (obviously cos otherwise I wouldn't have started googling!) and it acually made the whole of the rest of the pregnancy quite stressful so please try not to worry.

3frenchhens · 29/12/2009 15:17

Hi all, thank you very much for all your replies. I have called today pretty much all day and no answer at all. My midwife doesnt know and has said to wait. I've been so good waiting a week and then they dont pick up i am very frustrated!

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3frenchhens · 30/12/2009 15:59

hi all have news- were low risk the letter is in the post. Thank you all so much for your support it really helped me through the past week. Wishing you all a peaceful new year x

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Cantdothisagain · 30/12/2009 17:19

Oh I am so pleased, 3FrenchHens. Congratulations, and enjoy the rest of the festivities with some reassurance!

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