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anxious about cvs - v complicated and long but pls read before chiming in

28 replies

flappybitsoskin · 24/05/2009 21:46

I carry fatal genetic disorder. Prob 50/50 of passing it on but less than 1 in 8 of actually getting to birth. Then chances of sb v high

I have 1 dc affected by this. DC has loads of medical / physical / developmental probs and has limited life expectancy

I have 1 unaffected dc

Haven't planned to get pg. Had a coil and was hoping to be referred for sterilisation.

Was fully expecting to mc and haven't. Now am agonising about the cvs

I don't want to have another child with this disorder. Am not seeking to rule out all disability - biggest fear is burying 2 dc. And my other dc loosing all their siblings. As vile and scary I find tx I prefer this option over the former scenario. At least I wouldn't 'know' that child so much and only dh and I would have to deal with. Not my existing dc.

Still - am terrified and desperately uncomfortable with whole thing. Couldn't care less if it hurts me but so scared of mc as a result of procedure. Have had it before btw so know what I'm facing.

Anyone else been in similar situation?

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flappybitsoskin · 04/06/2009 15:03

thankyou Doris

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JumpingJellyfish · 09/06/2009 12:36

flappy- thinking of you today, I am so sorry the lil bean didn't make it. But I know too what you mean about at least this prevents you from possibly facing a tx.

I have had wonderful news- LO does not have CF! Found out last Thurs afternoon but been frustratingly unable to get online since last Weds. The relief is unreal!

Really hope you are ok, will keep you in my thoughts- and thank you for your support too xxx

flappybitsoskin · 10/06/2009 21:51

that's fantastic JJF - v pleased for you. Hope you can relax and enjoy yr pg now

all went well for me yesterday. Rather shattered and twingey now but ok. Relieved its over and trying not to dwell and be sad

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