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Positive for T21 4 months after TFMR

7 replies

diamonds2023 · 17/06/2026 21:48

Had a TFMR early this year for a very unwell baby with spinal and brain abnormalities as I didn’t want to bring a baby into this world who was suffering to suffer more.
Now 3 months pregnant with a new pregnancy and NIPT and CVS have tested positive for T21.
How can I be so unlucky 💔
How can this happen to me it feels cruel 😢
I was 39 when this baby was conceived so I do know age has an impact but I didnt think I could be this unlucky 💔

OP posts:
TheignT · 17/06/2026 22:01

I'm so sorry. Life can be very cruel. I know there is nothing I can say to ease your pain, I wish there was.

FernFaery · 17/06/2026 22:04

I’m so sorry to hear you’re going through this. Have you considered contacting the Down Syndrome Association for some advice?

Lougle · 17/06/2026 22:06

@diamonds2023 that must have been a shock. Sorry you're having another stressful pregnancy. I hope you have lots of support over the next few weeks as you make decisions. There's a lot of support for parents and children with Down Syndrome if you choose to continue the pregnancy. I know many people decide to terminate, but I hope you get support to make your own choice.

IceyBisBack · 17/06/2026 23:08

You might not want to hear from me...but its T21..... mum of a severely disabled boy. Lights up the world. One if my friends was told to abort thier child due to brain deformities. Charlie is now 19 and yes disabled but living his best life,breaking hearts...enjoys far too much cricket for my liking...thats definitely makes him weird. His parents were persuaded to abort at 38 weeks.

Mulberrybush1992 · 17/06/2026 23:34

I don’t want to undermine how you’re feeling right now, it sounds like you’ve had the most awful few months. There’s an instagram page called positiveaboutdown_syndrome. It’s full of pure joy. I have a sibling with Down Syndrome and was old enough at the time of my mum’s pregnancy to now remember the anguish they went through in knowing what to do. My brother brings joy to our lives. I only wish we’d all known it before meeting him.

diamonds2023 · 18/06/2026 07:39

Thank you all for kind comments.
Unfortunately we wouldn’t be in a position to continue so please don’t post stories about children with T21 as I feel bad enough 😢
We have been told there are quite severe heart defects and have a young toddler already and we don’t have the support system around us to support if we had to spend weeks away in hospitals for the care that they would need :(
And I don’t think it’s fair to bring a baby into the world who would have to deal with complicated surgeries and health conditions I would feel extremely bad.
Its a cruel world as well while growing up :(

OP posts:
Fletchasketch · 22/06/2026 10:48

I am so very sorry you're going through this, just horrendous luck. I had a TFMR for T21 last December. It's been a rough six months, but I don't regret the decision and it has got easier to bear as time goes on. At the time it didn't feel survivable, but here I am. You will get through this. Sending you love and strength, feel free to message me if you feel it would help.

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