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Increased NT at 12 week scan, CVS clear so far

20 replies

MumToBe0704 · 16/03/2026 09:08

Hi- just wanting to share a positive story (so far!) from recieving an increased NT measurement at a 12 week scan. Reading these really helped me get through the awful wait of finding out whether my baby was healthy or not so really hoping this helps parents in the same boat.

After seeing the baby wiggling around and everything looking great, we were told by the sonographer that the babys NT was measuring 6.3mm (well above the 3.5mm limit). We were then put into a 'quiet room' to be told that the baby could either have a chromosomal issue, heart problem or perfectly healthy and some babies just have more liquid behind the neck.

We were then seen by the fetal medicine consultant who throughly examined the baby and it's heart/heart beat. Thankfully she could see nothing at all wrong apart from the increased NT to which she measured a little less at 5.1mm.

We were then advised to have a CVS to check for chromosomal issues (to which they got us in the following morning). This was a uncomfortable but they did numb the area and would do it all over again if i had to.

Then came the grueling 3 day wait to see whether we had a healthy baby, it was the most horrendous experience we have ever gone through and wouldn't wish it upon anyone. Especially as we had already come to the decision that if there was something seriously wrong we sadly wouldn't have continued with the pregnancy. Reading stories online and researching was the only thing getting me through the week. I am also a healthy 24 year old with no family history of genetic problems, so this news really did completely shock us.

We then had the combined screening results back which said 1 in 2 chance of Downs and 1 in 4 chance of Patau/Edwards syndrome. This was of course extremely alarming however the results are heavily skewed by the increased NT measurement so we were expecting a high risk result anyway.

Friday came and we had the amazing news that baby is all clear of Downs/Edwards & Patau and that we are having a little boy! We could not believe it and how lucky we are. We are now waiting for 2nd part of results to check for rare genetic problems, however, due to all other markers on scan being fine and normal the consultant is positive that they will also come back clear. We are also due to see a heart specialist to check for heart problems, but again, the consutant couldn't see anything on her end when she examined so fingers crossed everything is all ok!

Sending so much love and praying for those who have recieved a sad outcome from situations like this, it is the most outrageous experience hearing that news and waiting.

OP posts:
jmstar · 16/03/2026 10:19

Currently also going through this. NT was a bit lower at 4.6 but there was also another soft marker of a single artery umbilical cord. Had the CVS done early last week and was really expecting the quick results would come back positive but they came back all clear. Now waiting for the next set of results and then if that's okay the more detailed scan and heart scan at 16 weeks.

It's such a scary time and quite lonely, but have found all the posts on here have really helped.

MumToBe0704 · 16/03/2026 12:26

jmstar · 16/03/2026 10:19

Currently also going through this. NT was a bit lower at 4.6 but there was also another soft marker of a single artery umbilical cord. Had the CVS done early last week and was really expecting the quick results would come back positive but they came back all clear. Now waiting for the next set of results and then if that's okay the more detailed scan and heart scan at 16 weeks.

It's such a scary time and quite lonely, but have found all the posts on here have really helped.

So sorry to hear you are going through the same thing. Really pleased for you that your results have come back clear so far and keeping fingers crossed for us both!

OP posts:
OneDayHope · 18/03/2026 17:28

I was in your shoes…with a positive ending. This time last year 12 week scan showed 5mm NT, took into the side room and hit with all sorts of scary stats, we thought it was all over. We stayed with fetal medicine until I was 34 weeks pregnant and thankfully following the dreadful 12 week scan it was positive news only. My healthy baby girl will be 6 months in a few days, sending so much strength to you and anyone else going through this, lots of positive outcomes are out there x

MumToBe0704 · 18/03/2026 17:37

OneDayHope · 18/03/2026 17:28

I was in your shoes…with a positive ending. This time last year 12 week scan showed 5mm NT, took into the side room and hit with all sorts of scary stats, we thought it was all over. We stayed with fetal medicine until I was 34 weeks pregnant and thankfully following the dreadful 12 week scan it was positive news only. My healthy baby girl will be 6 months in a few days, sending so much strength to you and anyone else going through this, lots of positive outcomes are out there x

Oh this is absolutely amazing, so so pleased for you! Thank you for sharing, really does give so much hope reading these stories!

OP posts:
jmstar · 18/03/2026 20:52

OneDayHope · 18/03/2026 17:28

I was in your shoes…with a positive ending. This time last year 12 week scan showed 5mm NT, took into the side room and hit with all sorts of scary stats, we thought it was all over. We stayed with fetal medicine until I was 34 weeks pregnant and thankfully following the dreadful 12 week scan it was positive news only. My healthy baby girl will be 6 months in a few days, sending so much strength to you and anyone else going through this, lots of positive outcomes are out there x

Yes thanks for adding a positive story. So glad it all worked out for you. Really hope I can post my positive story on here, and you too @MumToBe0704

RT1620 · 20/03/2026 18:15

Wow that’s an amazing story! We had a nt of 6.6mm last year but sadly she had patau syndrome. Currently feeding my 4 week old healthy baby boy though :) wishing you all the best in the rest of your pregnancy x

MumToBe0704 · 21/03/2026 06:42

RT1620 · 20/03/2026 18:15

Wow that’s an amazing story! We had a nt of 6.6mm last year but sadly she had patau syndrome. Currently feeding my 4 week old healthy baby boy though :) wishing you all the best in the rest of your pregnancy x

@RT1620 I’m terribly sorry to hear that, that must have been absolutely heartbreaking for you, well done for getting through that as it couldn’t have been easy. So pleased for you that you now have a healthy baby boy, huge congratulations!!!

OP posts:
MumToBe0704 · 21/03/2026 06:43

MumToBe0704 · 16/03/2026 09:08

Hi- just wanting to share a positive story (so far!) from recieving an increased NT measurement at a 12 week scan. Reading these really helped me get through the awful wait of finding out whether my baby was healthy or not so really hoping this helps parents in the same boat.

After seeing the baby wiggling around and everything looking great, we were told by the sonographer that the babys NT was measuring 6.3mm (well above the 3.5mm limit). We were then put into a 'quiet room' to be told that the baby could either have a chromosomal issue, heart problem or perfectly healthy and some babies just have more liquid behind the neck.

We were then seen by the fetal medicine consultant who throughly examined the baby and it's heart/heart beat. Thankfully she could see nothing at all wrong apart from the increased NT to which she measured a little less at 5.1mm.

We were then advised to have a CVS to check for chromosomal issues (to which they got us in the following morning). This was a uncomfortable but they did numb the area and would do it all over again if i had to.

Then came the grueling 3 day wait to see whether we had a healthy baby, it was the most horrendous experience we have ever gone through and wouldn't wish it upon anyone. Especially as we had already come to the decision that if there was something seriously wrong we sadly wouldn't have continued with the pregnancy. Reading stories online and researching was the only thing getting me through the week. I am also a healthy 24 year old with no family history of genetic problems, so this news really did completely shock us.

We then had the combined screening results back which said 1 in 2 chance of Downs and 1 in 4 chance of Patau/Edwards syndrome. This was of course extremely alarming however the results are heavily skewed by the increased NT measurement so we were expecting a high risk result anyway.

Friday came and we had the amazing news that baby is all clear of Downs/Edwards & Patau and that we are having a little boy! We could not believe it and how lucky we are. We are now waiting for 2nd part of results to check for rare genetic problems, however, due to all other markers on scan being fine and normal the consultant is positive that they will also come back clear. We are also due to see a heart specialist to check for heart problems, but again, the consutant couldn't see anything on her end when she examined so fingers crossed everything is all ok!

Sending so much love and praying for those who have recieved a sad outcome from situations like this, it is the most outrageous experience hearing that news and waiting.

UPDATE: we received the call yesterday that the 2nd lot of CVS results have come back all clear!! Now for the heart scan next Tuesday…

OP posts:
OneDayHope · 21/03/2026 21:07

MumToBe0704 · 21/03/2026 06:43

UPDATE: we received the call yesterday that the 2nd lot of CVS results have come back all clear!! Now for the heart scan next Tuesday…

I remember the wave of huge relief when we had this call, over the moon for you x

jmstar · 22/03/2026 07:31

MumToBe0704 · 21/03/2026 06:43

UPDATE: we received the call yesterday that the 2nd lot of CVS results have come back all clear!! Now for the heart scan next Tuesday…

That's great news! I haven't heard back about the full results yet.

MumToBe0704 · 24/03/2026 20:40

MumToBe0704 · 16/03/2026 09:08

Hi- just wanting to share a positive story (so far!) from recieving an increased NT measurement at a 12 week scan. Reading these really helped me get through the awful wait of finding out whether my baby was healthy or not so really hoping this helps parents in the same boat.

After seeing the baby wiggling around and everything looking great, we were told by the sonographer that the babys NT was measuring 6.3mm (well above the 3.5mm limit). We were then put into a 'quiet room' to be told that the baby could either have a chromosomal issue, heart problem or perfectly healthy and some babies just have more liquid behind the neck.

We were then seen by the fetal medicine consultant who throughly examined the baby and it's heart/heart beat. Thankfully she could see nothing at all wrong apart from the increased NT to which she measured a little less at 5.1mm.

We were then advised to have a CVS to check for chromosomal issues (to which they got us in the following morning). This was a uncomfortable but they did numb the area and would do it all over again if i had to.

Then came the grueling 3 day wait to see whether we had a healthy baby, it was the most horrendous experience we have ever gone through and wouldn't wish it upon anyone. Especially as we had already come to the decision that if there was something seriously wrong we sadly wouldn't have continued with the pregnancy. Reading stories online and researching was the only thing getting me through the week. I am also a healthy 24 year old with no family history of genetic problems, so this news really did completely shock us.

We then had the combined screening results back which said 1 in 2 chance of Downs and 1 in 4 chance of Patau/Edwards syndrome. This was of course extremely alarming however the results are heavily skewed by the increased NT measurement so we were expecting a high risk result anyway.

Friday came and we had the amazing news that baby is all clear of Downs/Edwards & Patau and that we are having a little boy! We could not believe it and how lucky we are. We are now waiting for 2nd part of results to check for rare genetic problems, however, due to all other markers on scan being fine and normal the consultant is positive that they will also come back clear. We are also due to see a heart specialist to check for heart problems, but again, the consutant couldn't see anything on her end when she examined so fingers crossed everything is all ok!

Sending so much love and praying for those who have recieved a sad outcome from situations like this, it is the most outrageous experience hearing that news and waiting.

UPDATE: Heart scan today was fine, everything looked normal at this stage. We are so pleased and relieved. We have to go back at 20 weeks to check for any minor problems when the baby’s heart is a bit bigger

OP posts:
jmstar · 25/03/2026 09:31

My full CVS results also came back all clear!

MumToBe0704 · 25/03/2026 09:33

jmstar · 25/03/2026 09:31

My full CVS results also came back all clear!

This is amazing, so happy for you

OP posts:
jmstar · 25/03/2026 09:35

MumToBe0704 · 25/03/2026 09:33

This is amazing, so happy for you

And so glad to hear your heart scan also went well! How many weeks were you when you had that? I've got mine in 2 weeks time.

I hope this thread gives people hope who are going through the same thing!

FallenNight · 25/03/2026 09:42

Just a little note to add that even if something is found, it is not always the end of the world. We had the same, heart scan found an issue, but many heart issues can be corrected either very early or later in life when baby is stronger. They are rare and I hope that you find nothing at the scan but if there is something, don't despair.

writingsonthewall · 25/03/2026 09:48

I had this, 6.5mm nuchal followed by CVS / full microarray then heart scans. He’s 12 now and nothing wrong.

OneDayHope · 25/03/2026 17:12

jmstar · 25/03/2026 09:31

My full CVS results also came back all clear!

Amazing!! Soak up the good news, and i hope your pregnancy feels more relaxed enjoyable from here 😊x

MumToBe0704 · 28/03/2026 18:41

jmstar · 25/03/2026 09:35

And so glad to hear your heart scan also went well! How many weeks were you when you had that? I've got mine in 2 weeks time.

I hope this thread gives people hope who are going through the same thing!

I was 14 weeks. Best of luck for yours keep us posted!!!🤞🏼

OP posts:
jmstar · 09/04/2026 07:56

My heart scan and anatomy scan were all normal and nuchal measurement also went down so in the normal range now!

MumToBe0704 · 09/04/2026 08:09

jmstar · 09/04/2026 07:56

My heart scan and anatomy scan were all normal and nuchal measurement also went down so in the normal range now!

Oh I am so so pleased to hear this for you, what a result!❤️ I’ve got my anatomy scan in a few weeks so hoping all is good for that

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