CVS unsuccessful - try again in a week? Please share

[Anxiouslywaiting1995]

Hi,

really hoping someone can help - I went to have CVS today for a genetic condition that I have. It carries a 1:2 chance of my baby boy being affected and my head is entirely all over the place.

me and my partner have agreed to TFMR which is completely heartbreaking if the results are positive. I went today at exactly 12 weeks and the consultant couldn’t do it because my bowel was in the way and I have a posterior placenta.

he has asked me to come back in 1 week and if still unable to do it then amniocentesis is the other option.

my dilemma is morally I feel like waiting for amniocentesis is too late to terminate, this is a personal decision due to what the genetic condition is. It’s not life threatening but life limiting and that’s what hurts me the most. Amnio would be at 15 weeks with 2 week response for results but CVS is a week. Having to wait until next week to try again is already pushing me morally and I’m distraught.

has anybody had to go back in a weeks time and been successful? I can’t help but think it won’t change and it’s breaking my heart to think every day I’m growing this little baby.

any help really wanted, I’m losing my mind here x

OP, I’m sorry I can’t help but didn’t want to read and run. What a dreadful dilemma. Are there any alternative hospitals you could try? Or jump up and down at the GP’s and tell him how much angst it’s causing you, and could they do it earlier? This is really tough for you, OP - sending hugs.

I’m so sorry you are in this position. It was a different situation, but we found out our baby had a serious condition at 12 weeks, but had various further testing and didn’t terminate until 17 weeks. Morally we were comfortable that even at 17 weeks the baby didn’t have awareness/ couldn’t feel pain etc. it’s an awful situation, be gentle with yourselves. ARC we’re extremely supportive for us 💛

Sorry you’re in this situation.
often things change enough in one week that the placenta can be accessed. if you’ve already been seen by a consultant experienced in CVS, who said the placenta is not accessible right now, I wouldn’t think a second opinion is useful. I also don’t think PP suggestion of going back to your GP and asking to arrange sooner repeat review is useful - the point of waiting a week is to allow your uterus to grow a bit and things to change position a little. Overall it sounds like they’re managing the situation completely appropriately with you, and although waiting is difficult, I think you just need to focus on getting through the week until your next appointment.

Regarding having to wait for amniocentesis possibly - hopefully it doesn’t come to that, of course it makes things feel harder the later you get through the pregnancy - but perhaps just try to take things step by step - 50% chance that baby is absolutely fine in any case.

Good luck

Thank you so much - I spoke to the fetal medicine department and they’ve told me a week is the minimum I need to wait so I think I’m just trying to keep busy until next Wednesday and hope with everything I have they can do the test. It’s heartbreaking.

Thank you everyone - your kind words mean a lot.

Just to update incase anybody is searching the internet looking for answers like I was!

I had a second attempt on Wednesday and it was successful with no complications. Just got to wait a week for the results now. Sending love to anybody in a similar situation x

I have everything crossed for you and your baby 🤞