Fluid on brain

[Rainbow345]

Hi,
I’ve been for a growth scan today (32 weeks). At 27 weeks, baby was on the 88th percentile. Today they’ve measured at being almost on 99th percentile so I’ve been referred for a gestational diabetes test. Nothing else was mentioned at the scan but I’ve just had a phone call saying they’ve noticed the measurements of baby’s brain show 10mm? of fluid so I now need another scan and possibly an MRI. Does anyone have experience of this? The midwife told me not to worry but I’m in bits.

I just wanted to send hugs, and it sounds like it may be mild ventriculomegaly. They will get you in for a scan very quickly, and be able to give you a more accurate reading. I didn't want you to be ignored on here as I remember what it was like x

Yes! I was told my baby had 14mm of fluid. I went to our area fetal medicine unit and was told there was no issue and the measurements on my original scan were wrong. We were offered an mri but it was a 6 week wait and in Leeds.

Baby arrived at 35+5 and was perfectly healthy. They kept us in for 48 hours and did an ultrasound on his brain. All was good. Try not to worry too much although I know that's easier said than done. I'll keep everything crossed for you.

I agree it sounds like borderline ventriculomegaly. I would try some Facebook groups- tons of positive stories there with babies who had even severe ventriculomegaly.

Thank you for these replies - the phone call was completely out of the blue and it was really hard to take in what I was being told so having a name put to it is very helpful.

My dd was diagnosed at 28 week 'reassurance' scan with severe ventriculomegaly of 14 and 16 mm which immediately became a really dark time of all sorts of tests, MRIs and offers of medical termination etc. Yours definitely sounds similar but on a much milder level. We had bigger ventricles (that is what they are measuring) it was both sides and a couple of weeks earlier in pregnancy. Before I say any more my DD is a perfect human currently 17 and halfway through studying for A levels.
The last time they gave us the option to terminate was at 37 weeks and again we refused. The info on the Internet was horrendous no comparables with anything like good outcomes. We were given statistics of 70% plus severe to profound difficulties. As you can see this was a horrible case and we had an amazing outcome.

My DSC also had ventriculomegaly but mild, and monitored more closely. She is in her second year as a grammar school teacher and gain an amazing human. So what I'm trying to say is good luck and don't worry. They have so many tools out there now to monitor things I think they just want to take advantage and be forewarned about things further down the line. Good luck. Let us know how everything goes.

Thank you - I’ve seen so many stories like yours which is helping me to feel a bit less worried.

By way of anecdata, it turns out I have severe VM which has gone untreated for over 4 decades and it has caused me no problems.