Hydrops around baby and in heart

JessBaby3 · 2024-08-06T07:59:48+00:00

Hi, I don't really know what to put. We had our 12 week scan on Friday and was told that baby had an NT of 3.6mm but was in awkward position. Referred to FMU. Went to FMU yesterday and they found that the NT is actually 4.7mm and the baby has hydrops around their whole body and 1mm in their heart. Couldn't do a CVS as my bowel was obstructing the placenta. Another appointment next week to try again but looks more likely that it will be waiting for an Amnio at 15 weeks. No screening results back yet either. Baby is otherwise perfect. Growing nicely. Moving around on the scan. Eating their hands. The whole situation is awful and I don't know what to do.

Blast182 · 19/02/2025 13:00

Hello, this is a very late reply but I went through something similar. So sorry you were in this situation. Any update on what happened?

Original poster

JessBaby3 · 23/02/2025 01:53

Blast182 · 19/02/2025 13:00

Hello, this is a very late reply but I went through something similar. So sorry you were in this situation. Any update on what happened?

Hello! So funny you should ask this week as baby arrived on Monday! 😊
So, I went back for another scan the next week and was told that the fluid around the heart had gone. Gradually over the weeks, the fluid around the baby became less and less.
I had the amnio test which came back completely clear. We also had a fetal heart scan which was all normal.
We continued to be scanned under FMU due to the baby having a very short FL (as in off the graph short) and it was suggested that this could be a form of dwarfism - however no other symptoms were found and he was growing at a slow but steady rate.
In the end, we were discharged from FMU at 28 weeks back to our local hospital for 4 weekly growth scans to monitor his FL growth. It remained on the low side but steady and on the same growth curve throughout, getting up to around the 20th centile by 39 weeks.
He was born just after 40 weeks, and does have shorter legs but they are nicely in proportion to the rest of him so no current concerns. He passed all his checks so far (just waiting on his blood spot test) so fingers crossed it was all just a huge blip.
The whole pregnancy was extremely stressful (and not something I could go through again) but he is a lovely little miracle for making it through everything and hopefully we'll get that final clean bill for him soon!

OP posts:

minerva7 · 23/02/2025 02:34

Congratulations op 💐💙

Original poster

JessBaby3 · 23/02/2025 12:49

Should also add - we were told all the way through that he would be very small.
He arrived 8lb6 so not that small!
Hopefully anyone reading this will get the bit of hope that I needed when everything feels so bleak

OP posts:

Blast182 · 23/02/2025 16:26

JessBaby3 · 23/02/2025 01:53

Hello! So funny you should ask this week as baby arrived on Monday! 😊
So, I went back for another scan the next week and was told that the fluid around the heart had gone. Gradually over the weeks, the fluid around the baby became less and less.
I had the amnio test which came back completely clear. We also had a fetal heart scan which was all normal.
We continued to be scanned under FMU due to the baby having a very short FL (as in off the graph short) and it was suggested that this could be a form of dwarfism - however no other symptoms were found and he was growing at a slow but steady rate.
In the end, we were discharged from FMU at 28 weeks back to our local hospital for 4 weekly growth scans to monitor his FL growth. It remained on the low side but steady and on the same growth curve throughout, getting up to around the 20th centile by 39 weeks.
He was born just after 40 weeks, and does have shorter legs but they are nicely in proportion to the rest of him so no current concerns. He passed all his checks so far (just waiting on his blood spot test) so fingers crossed it was all just a huge blip.
The whole pregnancy was extremely stressful (and not something I could go through again) but he is a lovely little miracle for making it through everything and hopefully we'll get that final clean bill for him soon!

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Absolutely over the moon for you! We had exactly the same with our little girl. Dr's all advised on rethinking the continuation of the pregnancy as her Hydrops were so bad, the chances were something mental like 0.1% of a healthy baby at the end. The only thing my daughter has is short legs too but my husband has a large torso length in comparison to his legs so I'm blaming him 😆 It doesn't stop her though. She's 3 now and absolutely mental. So fast too! I get what you mean about the stress though. We have two kids and that pregnancy made me decide that is enough. The constant worry and not knowing what to do and what advice to listen to. Just goes to show there is so many happy endings with hydrops and Google definitely wasn't my friend in regards to the situation.

Huge congratulations to you for going through all that. Hopefully you'll have some time to rest up now that they are here. You definitely deserve it. ❤️🧡💛