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High NT, NIPT low risk & tricuspid regurgitation

4 replies

L199 · 25/08/2023 09:08

Just wondering if anyone has been through anything similar and what the outcome was?

On 14/08, I had my first scan at 13 weeks. During the scan we were told the NT was high at 5.2mm but everything else looked good. The sonographer referred me to the Fetal Medicine Unit and advised they would be in touch with an appointment. I had my bloods done for the combined test and we left

On Tuesday 15/08, I received a call asking if I could come for an appointment at FMU the following day. I met the consultant who did a scan and told me that everything looked good but my bloods had come back with a 1 in 5 chance of Down Syndrome and a 260 chance of Edwards and Patau- I am 25 so my risk before this was something like 1 in 1300 and < 1 in 5000

My results were
bHCG 0.51 MoM
NT 2.86 MoM
PAPP-A 1.58 MoM

He went through our options and came up with a plan that I would do the NIPT & Torch test that day, he would refer me for a fetal cardiac scan and he suggested to do an amniocentesis when I reached 15 weeks

The next few days of waiting on the NIPT results were torture and I was an anxious/crying mess- it felt like a lifetime of waiting! When the midwife finally called and told me the results came back low risk, I felt so relieved but it was onto the next hurdle

I then had the fetal cardiac scan and was told everything looked good but (there always seems to be a but...) she noticed tricuspid regurgitation which can be a sign of genetic abnormalities regardless she would like to see me at 20 weeks

I am going to go ahead with the amnio as I need to know for sure but I just wanted to know if anyone has been through this? I have probably read every inch of google but am trying to prepare myself for the worst. It is such a lonely and worrying time

OP posts:
Cantchoosename · 14/09/2023 21:47

Hi OP, how are you doing? I hope the amniocentesis results came back all good. Have you had your 20 week scan yet?

L199 · 19/09/2023 21:51

Thank you for your reply. The amnio came back all clear thankfully. I have the 20 week scan in 2 weeks and a scan with fetal medicine and a cardiologist after that so we will know more then

OP posts:
Spears979 · 15/11/2023 15:00

Hi there,

Just reading your thread as I'm going through a really similar situation at the moment. NT of 5.8mm, 1:4 chance of downs and 1:20 edwards and patau's from the combined screening.
My NIPT results came back today as low risk too and now have to wait for the amnio at 16 weeks.

You really summed up my feelings as as much as I'm relieved, I know there are so many more hurdles to overcome!

How are you getting on now?

L199 · 12/12/2023 17:47

Hello,

apologies I have only saw this now

Still on this journey ( 30 weeks now) and still being seen by fetal medicine consultant and heart specialist. 20 week scan everything looked good but the leaky valve is still there although mild. I am still none the wiser though as they still have no answers for me yet

Did you have your amnio yet? I hope everything is okay

OP posts:
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