I’m hoping someone might be able to advise or share their experience.
Im keen to try for our third child. We have two children, the youngest of who unfortunately has an inherited, life shortening condition. I’ve been referred to the genetics Dept because of the chance of this condition being passed to future children, and know we can have the Nipt to rule out this condition if we wish.
However, the worry that comes with being pregnant, based on the experience of my little boy, is filling me with extreme worry. The weeks following his birth were horrendous, we still struggle to reflect on it now.
I was also recently pregnant, but the sheer panic that came with the unknown, combined with a hospital admission for two weeks with my little boy, led me to terminate the pregnancy. I felt like I was in a blind panic, and absolute fear and overwhelming emotions were controlling me. I’m now devastated at the realisation of not having that child.
Before we go any further, who can I speak to to ask about testing/ screening etc? The genetics Dept could only explain what they specialised in. I asked if while we were having that blood work done, could we also source anything privately, but she said she didn’t know.
Who do I speak to? I’m sort of anticipating that GPs won’t be specialised enough, I don’t expect consultants to have the time to talk to us before even being pregnant, my midwife wanted to wait until 10 weeks before an appt.
I feel if I had some more answers, or knew more about our options, we would be able to make a better informed decision.
I feel so utterly devastated at all hat we’ve been through, and just desperately want to create the family I always imagined.
Thanks.