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High Nuchal Translucency-Positive Story

6 replies

Springjoy21 · 20/03/2023 20:42

I’ve been meaning to write this post for the past few years and have finally found got round to sharing our experience. I hope it helps someone going through a similar thing.

At our 12 week scan with our first baby we were told that the nuchal translucency was measuring much higher than normal at 4.8mm. We were quickly referred to a consultant in foetal medicine the following week and given a pretty dire picture that our baby likely had a severe chromosomal or genetic disorder. We were completely devastated and what followed was a horrendous few weeks of stress and worry while we waited for an amniocentesis at 16 weeks. I was signed off work at this point due to extreme stress.

3 days later we received the FISH results over the phone which were all normal. The nurse said this was great news and the likelihood would be that the full amniocentesis results would be normal too Fast forward 2 weeks and the amniocentesis results were normal too!! We had a cardiac scan at 20 weeks, again all normal and the 20 week scan was all good too. We were beyond relieved, if not a bit traumatised from all the stress.

And that little baby is now our bright and beautiful nearly 6 year old boy who was born fit and healthy with no issues whatsoever. We know that we’re extremely blessed to have such a positive outcome and just wanted to give hope to other parents going through this.

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MrsEmilyB · 21/03/2023 21:46

Just wanted to hop on and say I hope everything is okay 🤍 whatever comes.

Surprisepregnancy1 · 23/03/2023 15:34

Thanks so much for sharing! My NT was high and all tests since were clear and all subsequent ultrasounds normal, but can’t shake the anxiety from that first scan. I’m almost 35 weeks so not long to go. Wishing you and your little boy well!!

Springjoy21 · 23/03/2023 20:51

I’m so glad all your tests and scans have been normal since but I completely get that you can’t shake the anxiety, I was exactly the same! It was such a stressful time! Like you, I think that initial scan triggered so much anxiety for me that I just couldn’t relax even though all subsequent tests were ok. I’m sure all will be well with your little one, I hope it all goes really well for you and you can put all the worry behind you very soon.

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Valwithhope · 26/10/2023 16:42

@Springjoy21 I just wanted to say thank you for sharing your story as I am going through exactly the same with similar measurements. We had 4.5mm NT measurement at our 12 weeks scan and were absolutely devastated! Then referred to fetal.medicine and did the CVS which all came back clear after 3 weeks of torturous waiting. I am 20 weeks now and going to have my scan next week followed by detailed heart scan. Getting very anxious again as we are closer to the time but I'm trying to stay positive as so far everything been good. We also heard the heartbeat couple of weeks ago which was very reassuring!

Thank you for sharing, it gives me so much hope! ❤️

Springjoy21 · 28/10/2023 20:51

I hope all goes well for you and your little one, will be thinking of you next week. I remember the dreadful waiting and worrying, it’s so agonising 😞It’s great that the CVS was clear and hope the other scans give you more good news and you can enjoy the rest of your pregnancy

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Valwithhope · 03/11/2023 22:44

@Springjoy21 thank you for your kind words!

We have had the anomaly and the heart scan this week and baby boy passed both with flying colours 💙 we are absolutely over the moon and can enjoy the pregnancy now with a very active baby boy! We have to go back to fetal medicine at 28 weeks for a scan but if it's all good we will be discharged.

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