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Antenatal tests

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6.5 nt

9 replies

brambleramble · 26/11/2022 08:31

Hi,

I went in for my scan at 11+2 weeks, and they found a lot of fluid behind the neck (6.5mm). They seemed at the hospital pretty adamant that it looked like something was quite wrong, and have booked me in for a CVS next Tuesday.

Im not particularly optimistic about the next steps, and feeling pretty down about the next few weeks. I had a scan at 10 weeks where they also found some fluid and told me it was a cystic hygroma. It seems to be getting worse which makes me really sad.

I told work about these scans but now I'm feeling quite stupid, especially if I have to medically terminate I don't really want them to know, as it feels more private than what I should tell my manager.

OP posts:
Downtherabbithole83 · 26/11/2022 09:08

I have been through this all recently (7mm NT) and did a lot of research finding that some babies with this kind of measurement are okay in the end. Unfortunately this was not the case for me and we tfmr after CVS confirmed T21.

A lot of people knew we were having the scan and as a result I was very open about our whole journey of tests, results (though we just shared it was a confirmed chromosomal issue rather than t21 to most people as didn’t want to have to justify our decision) and termination. This ended up being the best thing I could have done because the outpouring of love and support we have received has been invaluable.

I am high up in my position at work and have not yet returned and don’t want questions when I go back. An email briefly explaining the situation has been sent out to staff so that when I do return there is both understanding and space! I

I have been able to talk the whole process and experience through with my family and closest friends which has been so helpful in dealing with and managing my emotions at each stage.

I’ll keep my fingers crossed that you end up with a better outcome than I did but wanted to reassure you that telling people was not a stupid decision - you will need that support and understanding. The last thing you need to do right now is beat yourself up about things you can’t change! Focus on yourself and your feelings - you may be surprised at the support others can provide xx

Kdgp · 26/11/2022 10:59

My situation is a little different In regards to the NT, mine is 2 however my results have come back extremely high risk of syndromes, I'm currently awaiting results and wanted you to know your not alone in your worry, it's taken all my strength to get out of bed this morning, all I do is read forums hoping to find some relief and reassurance which is hard to come by. Your not alone and not silly for telling anyone about your baby news. Praying for a good outcome 🙏🤞

brambleramble · 26/11/2022 13:00

Thank you both so much for responding. I know of a lot of women who have had miscarriages, but I haven't known ppl who have faced tfmr (maybe that's also because I'm American and there's more of a stigma).

OP posts:
Downtherabbithole83 · 26/11/2022 13:11

@brambleramble I found that I had a few friends who had experiences missed miscarriages but even though I’ve been very open, I am yet to find any of my friends who have experienced this. I told those close to me to ask any questions they wanted and to let me know if they were comfortable with me being open - I’ve had a steady stream of messages and (only recently) a few visitors.

I have found this forum really useful for contact with people who genuinely understand.

Downtherabbithole83 · 29/11/2022 09:08

Hope your appointment goes okay today @brambleramble

brambleramble · 29/11/2022 19:24

Thanks @Downtherabbithole83 it unfortunately didn't go well, but the staff at the fetal medical centre was fantastic. They found a few structural issues, and the NT is growing from my last appointment. I'm getting the CVS tomorrow and expecting bad news.

Can I ask about your termination experience? I'm terrified of going through labour and going the medical route, but also very anxious about a trainee performing the procedure with the NHS

OP posts:
Downtherabbithole83 · 29/11/2022 20:26

I’m really sorry to hear it was a difficult appointment @brambleramble. Hopefully you get your results quickly so that you know one way or another as the waiting is so difficult.

You can ask me any questions you want about my experience - I am happy to share particularly if it helps someone else. Though reading through threads on here and the ARC forum, it would appear that everyone has their own experience - mine was generally positive (as much as this is possible in such a difficult situation).

I was petrified of delivery, especially as I’ve had two c sections previously, and was sure I wanted it done surgically. However, the hospital had been so amazing and supportive and I wanted it done as quickly as possible so went for medical management at the hospital we’d had our scans and CVS at. Surgical was not an option here and we’d have had to arrange our own appointment through BPAS if we wanted to go down that route whereas medical management could start the next day.

I went in the next day, spoke to the consultant and the midwife. I asked a lot of very specific questions including how much I’d bleed before the actual delivery and what it might feel like. Some of this was useful and very accurate, other was not so true for me. However, I know this has varied for people when reading other stories online. I got the first tablet - I struggled to keep food down for long after this but I am aware this could have been worry.

Two days later we came back in - I’d got the beginning of some gentle period pains and I thought I could see some very pale pink when I wiped but couldn’t be sure. We were in a private room with a toilet - fair warning: once the procedure had started (pessary inserted) I was told everything had to be done into a bowl as they wanted to check blood loss constantly. However that includes EVERYTHING that comes out of you during the wait - luckily someone else had mentioned this in another thread on here so although I was still mortified, it wasn’t a shock!

I was told that they would regularly give me more medication every few hours and this would eventually result in the delivery. I could ask for any pain relief as time went on. My experience here is not what I’ve seen often on here but the whole process from pessary to delivery of placenta took less than 2 hours - I never got any other medication (other than one dose of pain relief which I requested - if I’d have known it was going that quick I’d have asked for me). I had about 30/45 mins of quite intense contractions (this was by far the worst bit for me) then felt a rush which I assumed was the start of bleeding along with some pressure. I went to the toilet and with one squeeze (involuntarily and with no pain) I delivered my baby into the bowl. The nurse came and at my request took it away while I then repeated the process about 15 mins later to deliver the placenta. Once this was done the pain just disappeared. They brought my baby back for me to meet about an hour later (at my request). They also did hand and footprints which I picked up a week later.

I had dull period type pains for a bit longer - they came in waves but were hardly noticeable. I delivered a bit more placenta and had quite a bit of bleeding before I went home and more placenta again the next morning (I think - could have been a clot but the waves make me think not) I was only in hospital for about 8 hours altogether and that was because they monitored my blood pressure as it dropped a lot afterwards. Other than taking blood pressure and administering medication (anti-sickness jab was the best thing ever after being nauseous for 12 weeks straight) we didn’t really see anyone unless we asked for it. After the procedure was over, the bereavement midwife visited (I’ve seen her last week too) and the chaplain came down as well.

The week after was tough - my bleeding settled and was more like spotting from about 4 days. However my milk tried to come in and my boobs were so sore and hard - luckily this subsided quickly too. I’m now waiting to do a pregnancy test next week - other than the slight spotting I feel physically okay and even managed a short run today! Emotionally it’s like being on a tightrope - I’m okay but then one small thing tips me. I’m signed off work and am taking time for myself. We plan to try again as soon as possible - I’m 39 so feel like I need to get on with it.

Hopefully this is useful (and it would be wonderful if you never needed it). I know reading stories like this on here helped me prepare and sort out my wishes in the run up to getting our results so if reading this helps one person then it’s been worth writing!

brambleramble · 01/12/2022 07:11

Thanks @Downtherabbithole83 it's really comforting for me to read about other ppl who have gone through this. I'm petrified of a medical termination as this is my first pregnancy.

For me it's looking quite bad, I had the CVS yesterday as I was a bit too early to have it done sooner and the nt had gone from 6.5 to around 9, they found fluid on the lungs, there's some bowel outside the baby...in short I don't think it's a healthy pregnancy. Now it's just a matter of scheduling a termination and grieving

OP posts:
Downtherabbithole83 · 01/12/2022 08:26

@brambleramble I am so sorry to hear that things didn’t look good at the CVS appointment - it must have been so hard to receive all that information.

Am thinking of you - feel free to continue to message on here if you want to vent or ask anything else. If there is anything more personal that you want to ask, feel free to message me on here: I’m an open book so am happy to share anything about the experience I had if it helps xx

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