Hi all,
you might have seen my thread here from almost 3 weeks ago. I had a tfmr at 18 weeks. I received the post mortem results today and it was surprising to read all the abnormalities which were discovered. In a way i feel relieved? Im not sure if thats the right word but this confirms my baby was not compatible with life at all. He had no bladder or kidneys. The list goes on…
i googled this syndrome and it appears to be very rare 1 in 10,000 and apparently it is ‘sporadic’. Am I right in assuming this means it was a choromosomal abnormality? A case of just bad luck? I have a healthy 6 year old son and no one in my family or my husbands side of the family have anyone with such health conditions. This was also an ivf pregnancy.
i just wanted to know if anyone has heard of this syndrome?