Carrying sickle cell?

[VictoriaBlossom]

Hey ladies.
So I think I'm in the right bit.
In March I had a mmc, but had seen a midwife and had blood tests. I have come up with carrying the sickle cell gene.

Now my first response was, but doesn't that normally affect African/black heritage? As I am white Caucasian. The lady explained it is awfully rare and asked if I would like the bloods being sent away to work out where my heritage had stemmed with this kind of blood work result.

Turns out it's called Hb-osu Christian borg, descending from Ghana.
By the time the hospital came back to me, I'd already miscarried so they had no interest in testing my boyfriend.
Issue here is, I am now pregnant again, so I'm going to press on for boyfriend to be tested.

Has anyone else been in my situation where testing positive for sickle cell trait and is there anything you think I should know?

Hi I'm not exactly in your situation... but my Son has the trait from his dad. I did not know until my Son was born after the midwife did the heel prick test when I got the letter I was so upset!

Sorry this is a question for you.. if you are a carrier of the trait why is your midwife not keen to test your partner??

Because its too late if you both have the trait that then means your child will have the full blown disease.

Your question was my question to my midwife.
Basically if I hadn't told her I'd had a mmc (as per private scan, not nhs) she told me they would have continued to push for my partner to be tested.
But when a pregnancy is not viable the NHS drop everything.
She advised we could get tested privately, his GP may agree to the tests if he asked, but she couldn't guarantee it.
Pretty shoddy really. I'm only a couple of weeks pregnant right now but I'm getting on the phone Monday to get him tested.

Your GP should test your partner quickly (assume you’re in UK).

www.nhs.uk/pregnancy/your-pregnancy-care/screening-for-sickle-cell-and-thalassaemia/

Only now I'm pregnant again, which I think is bad because I think if he was also a carrier we would need to have some real hard decisions and conversations regarding babies!
I'm very confused that I've traced back to Ghanaian heritage though. I'd love to know more about it, and which parent it's linked to.