4mm NT with very active baby !

[user1469103274]

Had our dating scan today which was utter shambles. We have had 2 scans already prior to this , a private scan at 8+3 and 10+5 because I was dated early based on period. Both scans previously were all okay.

Today the sonographer made me half empty my bladder , then again a little bit more. Then she said there was then too much room and baby was doing handstands into my pelvis! Had to go for a little walk and baby still wasn’t very still.

She did the NT measurement 4mm so we are being referred for more tests. Never imagined this is how today would go and I just don’t know how much I trust what has been done. She hasn’t told us anything she didn’t tell us any baby length or anything which we have been told before.

Just feeling so numb and sad.
Not sure what to do with myself.
Need to wait for blood tests and referral to come through now for further tests and my stomach feels like ita bruised from how hard she was scanning and don’t know if I should be worried about it

I didn’t want to read and run. I’m sorry you didn’t have a great 12 week scan experience. I had the same a few weeks ago and the sonographer didn’t say much which made it worse. All I can say is the only thing you can do is wait for your blood test results and take it from there. Don’t do what i did and go for so many private scans. They don’t give you the depth/ detail in comparison to a nhs scan.

We had our blood test results back
0.7 PAPPa
0.89 HCG

Screening nurse & Dr have told me these are in normal range

Based on the 4mm reading downs risk is 1/60 , Edward’s and Patau are 1/1200 (ish - not considered high risk)

We were offered and have had an NIPT - awaiting results

Also been for an in-depth scan and everything looking okay and fluid is now in normal range 8 days later. If we had gone for our screening scan today we wouldn’t even be in this referral pathway.

we decided against CVS for now until we get the NIPT back if low we won’t go invasive based on the scan and blood results but will go for the cardio scan at 20 weeks

Hey, just looking for some updates if you have some :)

thankyou

Hi!
our NIPT test came back low chance so 99% chance that everything is okay

we went for our 20 week scan on Tuesday at fetal medicine where they did an in-depth cardiology scan with the consultant , nothing abnormal was seen and all seems healthy.

We then had the top to toe scan of the anatomy and again consultant wasn’t worried by anything she saw . I asked about any soft markers etc but nothing that she could see or was concerned. We are going back again as part of the pathway at 28 weeks .

The consultant we saw at 13 weeks was really helpful and showed us a graph I found really useful. the chart set out that with a 4mm NT that’s there was a 70% chance everything was okay , 20% chance of chromosome issue and 10% chance of heart issue. Hopefully these percentages help. I know if someone had set that out to me at our very first scan I would have felt incredibly better than I had , rather than the doom and gloom I was spoken to about .

baby is kicking away inside me and continue to hope everything continues to be okay.

Bristol Fetal Medicine have been incredible

wow!! thats amazing.
Me and my wife are in a similar situation..
the NT scan showed at 5.7mm :/
She took the NIPT 3 days ago.. now we are waiting!

Hey how did everything go? I had my 12 week scan last week and it measured 3.8mm. I've been offered NIPT and CVS but chose NIPT first because there's no risk but I keep thinking I should have CVS to clear my mind.

I'm based in Bristol and so glad to hear everything went really well. They've been great with us.

Had my 12 week scan last week measuring 3.8mm then next day at FMU it measured 3.6mm. Everything else is growing 'normal'. We decided to do NIPT for now and wait for the results but finding it a long wait. I keep thinking about getting CVS or amino test for a clear mind.

How is everything now?

My baby boy arrived 4 months ago completely healthy with no issues. We went on to be diagnosed with gestational diabetes but other than that everything was smooth in the pregnancy.

We continued to be scanned by Bristol up until 36 weeks just as contingency . We only ever had the NIPT and with the comfort of the 20w scans that was enough for us . I won’t sugar coat and say I didn’t worry during my pregnancy , even the moment he was born and put on me my first thought was is he okay. But I don’t regret not having the CVS , for me I didn’t want invasive testing and was comfortable enough with the NIPT and the regular and in-depth scans When we went for the referral scan the fluid had also decreased from 4mm to within the normal range too. And the blood work with the Pappa etc was all normal. I still think that our initial ultrasound was an mis-measurement !

the waits do feel like forever ! Sending lots of love and support as I remember just how worrying and painful the whole processes is and I feel robbed of the wonderful pregnancies others experience rather than one racked with worry .

Whatever you decide to do with testing , will be the right thing for you . You are the one in control and if you decline now that’s fine , if you change your mind the option is always on the table until you are around 22ish weeks

hi I’m so glad things turned out ok for you!

After a bit of advice…

Had a private scan today. Was told everything looked perfect and was dated as 10+6, which is close to what I thought (11+1).

Was sat in the waiting room waiting for my scan pictures when they called me back in. The sonographer said she re-watched the video and saw increased fluid along the baby’s back and said that leant towards increased nuchal translucency and could suggest an issue, but might not.

I have to wait until 17th May for my screening and dating scan but naturally I’m concerned, especially after so many losses and the fact I’m 42…

I’m not really sure what I’m dealing with here so reaching out for support/advice. Thank you.

Did they measure it for you ? Our private screening where I live do automatic NHS referrals if they have concerns , is this something the sonography offered or is something you can ask them about ?

If you are really worried then I you can pay for a harmony test , luckily we were offered this on the NHS but if the NHS won’t accept the measurements of increased fluid at your private scan this could be an option for you ?

sorry to hear your having to go through this xx

Hi @user1469103274 no they didn’t measure it but I’ve got the screening on the 17th so I’m assuming they’ll do it then. Tbh I’m a bit annoyed at the sonographer as she said that they don’t measure it that early as it can resolve itself. So why tell me then? I don’t know, baby is so active and wriggly and growing well that I find it hard to believe that something is wrong. I guess time will tell. It’s definitely stressful though x

Oh that’s awful to tell you that but not even measure and inform you properly to be honest. Fluid can go up and down and our babies fluid had reduced in the week between our scan and the referral. But they have to take the measurement as it was at the scan , usually if the fluid has decreased it is a good sign.

fingers crossed for you , it’s all so worrying . I have to say now baby is here , although I worry it’s easier to see if there is a problem and have found my worry is much much less ! Xx